Print

Print


Hi,

I've just found this list by poking around on the Internet.  A very good
friend of mine who is also my sister's long-time "significant other" has had
Parkinson's for several years. My sister is his primary caregiver.  They are
both having a tough time of it as his tremours and rigidity worsen and are
compounded by hallucinations and some panic attacks.  Though they live in
Manhattan in NYC we are having some difficulty finding cohesive, accessible
medical support.  They are now working with respected Specialists who are
unfortunately, but understandably, quite busy.

From what I've read of the emails that have already come in, I believe this
email list would be very helpful for my sister and my friend.  I'm hoping to
steer them to it.  In the meantime can anyone share knowledge, experiences
about:

1. Hallucinations with Parkinsons (drug-induced or other, e.g. Lewy Body
Disorders)
2. Balancing medications to control rigidity/tremours and minimize
halluciations.
3. Support groups in Manhattan, preferably between 42nd Street and 96th
Street, for (a) PWP  and (b) PWP Caregivers.

Thanks very much for any and all help.

Helen

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn