 |
 |
Hi Kathrynne, Thank you very, very much for this response, it is helpful. I will see if my sister can provide the meds and doses now in use. They are definitely working with a physician who is a specialist in PD, but he is quite busy. As I read the emails I get the idea that this is they way it is, too much disease not enough specialists. The web Drs. should be a good way to supplement info. The support group reference has given us good leads, thanks! Kind regards, Helen -----Original Message----- From: Kathrynne Holden, MS, RD [mailto:[log in to unmask]] Sent: Thursday, April 26, 2001 2:52 PM To: [log in to unmask] Subject: Re: Introduction/PWP & Hallucinations/Support Groups Dear Helen, I feel sure you will get many excellent answers to your questions; and I hope you can introduce your sister and your friend here, as well. > In the meantime can anyone share knowledge, experiences > about: > > 1. Hallucinations with Parkinsons (drug-induced or other, e.g. Lewy Body > Disorders) One possibility is over-medication, which can lead to hallucinations; if your friend is not seeing a neurologist who specializes in Parkinson's disease, that would be the very first thing to do -- locate such a physician and make an appointment. PD is much too complex and too individualized for most general neurologists to deal with, at least when such complications as hallucinations occur. > 2. Balancing medications to control rigidity/tremours and minimize > halluciations. It would be helpful if you could list all the medications your friend uses; if you know the amounts of each med per day, that would be useful also. > 3. Support groups in Manhattan, preferably between 42nd Street and 96th > Street, for (a) PWP and (b) PWP Caregivers. If you will click this NPF website: http://www.parkinson.org/acodemap.htm you'll find groups listed by area codes, and a group in your area code should be able to refer you more specifically to your neighborhood. Also the APDA has Information & Referrals, click this website: http://www.apdaparkinson.com/ Finally, there are some places on the 'net where you can ask PD specialists your questions: 1) Dr. Abraham Lieberman, a leading specialist in Parkinson's disease, answers e-mails at no charge on the National Parkinson Foundation website at: http://www.parkinson.org/ Scroll down the page to: Ask Dr. Lieberman, NPF Medical Director Click on this, and follow the directions. You can then e-mail your concerns to Dr. Lieberman. He usually answers within 48 hours. 2) University of Cincinnati, Case Western Reserve U., and Ohio State U. Click on the Ask an Expert section, then click on Parkinsons in the list of diseases. Dr. Arif Dalvi, a specialist in PD, usually answers within two days. http://www.netwellness.org/ 3)Parkinson's Disease Foundation's website -- Ask the Expert http://www.pdf.org May take 2-3 days Good luck to you, your friend, and your sister! Best regards, Kathrynne -- Kathrynne Holden, MS, RD Author: "Eat well, stay well with Parkinson's disease" "Constipation and Parkinson's" -- audiocassette & guidebook "Guidelines for Medical Nutrition Therapy for Parkinson's disease" & Risk Assessment Tools "Risk for malnutrition and bone fracture in Parkinson's disease," J Nutr Elderly. V18:3;1999. http://www.nutritionucanlivewith.com/ ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn