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Could you pls advise WHY your neuro a PD specialist
wants  you to go off your drugs completely.  I would
say  that he probably does not believe in your PD  at
all.  pls clarify.
rgds
--- Chuck Sarley <[log in to unmask]> wrote:
> ----- Original Message -----
> From: Chuck Sarley
> To:)
> Cc: [log in to unmask]
> Sent: Tuesday, May 01, 2001 2:34 PM
> Subject: Parkinsons? Long
>
>
> Hi all ;
> It is now about 4 years since I was diagnosed with
> PD. I was advised at that time that it would be a
> slow and progressive problem.
>
> Well here we are 4 years later and the problem has
> been  anything but slow and progressive. I have gone
> from working full time to not being able to work at
> all. I started with a mild  tremor witch is about
> the same. My fine motor skills in my hands has
> greatly diminished to where it is a real chore to
> type this posting.
>
> My walking and balance are almost  gone to the point
> of having to use a walker at  times. I leave the
> house only by vehicle as I am unable to walk any
> distance. Going from the house to the mail box is
> about all I can handle. It has also become a problem
> to sit erect at times,
>
> I saw my Neuro last week and was advised to start to
> reduce and eliminate my meds one at a time. Come
> back in 4 months and tell me how it went. I am on
> Sinemet 50/200 four times a day, Comtan 200 with the
> sinemet, Mirapex 25 three times a day. I was on
> dostenex for some time but could not afford the
> $230.00 for 8 tablets. He advised to start with the
> Mirapex then the Comtan and see how it goes. This
> Neuro is supposed to be the top PD Neuro in the
> area.
>
> I am at a los ass to what to do or where to turn for
> help. Does
> PD progress at this raapid a rate at times?  Has any
> one had this type of problem and how have you dealt
> with it. I am starting to apply for SS disability
> and for my private disability. I will finish with my
> working and accrued benefits in June.
>
> Sorry for the length of this posting
>
> Chuck Sarley
> [log in to unmask]
> [log in to unmask]
>
>
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