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Hi, I was recently told by my neuro to just take sinemet 25/100 yellow pill, about 3 hours in between and 1 50/200 CR at bedtime. I have pleaded with him to let me take a higher dosage of the CR and regular, less frequently, but he wants to see how I do with just the regular, for 1 week. True, that is the only thing helping me now, except that I rarely make it to 3 hours. Maybe this is the beginning of the end. BADABING. Mario ----- Original Message ----- From: "wojciech antkowiak" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, May 01, 2001 12:35 PM Subject: Re: Fw: Parkinsons? Long > Could you pls advise WHY your neuro a PD specialist > wants you to go off your drugs completely. I would > say that he probably does not believe in your PD at > all. pls clarify. > rgds > --- Chuck Sarley <[log in to unmask]> wrote: > > ----- Original Message ----- > > From: Chuck Sarley > > To:) > > Cc: [log in to unmask] > > Sent: Tuesday, May 01, 2001 2:34 PM > > Subject: Parkinsons? Long > > > > > > Hi all ; > > It is now about 4 years since I was diagnosed with > > PD. I was advised at that time that it would be a > > slow and progressive problem. > > > > Well here we are 4 years later and the problem has > > been anything but slow and progressive. I have gone > > from working full time to not being able to work at > > all. I started with a mild tremor witch is about > > the same. My fine motor skills in my hands has > > greatly diminished to where it is a real chore to > > type this posting. > > > > My walking and balance are almost gone to the point > > of having to use a walker at times. I leave the > > house only by vehicle as I am unable to walk any > > distance. Going from the house to the mail box is > > about all I can handle. It has also become a problem > > to sit erect at times, > > > > I saw my Neuro last week and was advised to start to > > reduce and eliminate my meds one at a time. Come > > back in 4 months and tell me how it went. I am on > > Sinemet 50/200 four times a day, Comtan 200 with the > > sinemet, Mirapex 25 three times a day. I was on > > dostenex for some time but could not afford the > > $230.00 for 8 tablets. He advised to start with the > > Mirapex then the Comtan and see how it goes. This > > Neuro is supposed to be the top PD Neuro in the > > area. > > > > I am at a los ass to what to do or where to turn for > > help. Does > > PD progress at this raapid a rate at times? Has any > > one had this type of problem and how have you dealt > > with it. I am starting to apply for SS disability > > and for my private disability. I will finish with my > > working and accrued benefits in June. > > > > Sorry for the length of this posting > > > > Chuck Sarley > > [log in to unmask] > > [log in to unmask] > > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > _______________________________________________________ > Do You Yahoo!? > Get your free @yahoo.ca address at http://mail.yahoo.ca > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn