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Hi Edith,,
I had two right ear operations - mastoidectomy -.
I also spent a few days painting an acoustic ceiling,
I placed plastic sheets around the perimeters of the room,
and would get inside. The acoustic ceilings were supposed to have been made
with asbestos, that is how, according to my wife, I contracted PD. I also
spent 18 months travelling from Los Angeles to Portland, Oregon, flying
every weekend. I hear that Oregon is supposed to have a large percentage of
PWP.s

I  think this is a wonderful project. I am offering my help if you need to
put the information into spreadsheets, summarize it, etc. I am a software
developer. So, let me know if you need any help. We can come up with all
kinds of good data, statistics. Age, age when contracted,
place of birth, occupation. God, this is great stuff.

thanks,

Mario
----- Original Message -----
From: "Edith S. Love" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, May 08, 2001 7:14 PM
Subject: How did I get here, anyway?


> Dear List Family,
>
> Have you ever taken the time to think about how we got on this PD/PD+ road
> we travel?  Have you ever wondered what illness, what accident, what
> environmental cause brought us here?
>
> This is a List Family thing, and I need your help.  I would like to see
how
> many of us may have had the same things happen to us that might have led
us
> on this path.  I'm interested in numbers-not names, etc.  I even have my
> med team interested in looking at the information which will go to the
List
> Family first.
>
> For example:  Have you ever had mono or an illness, even a childhood
> disease with a very high fever?  Have you ever been diagnosed with the
> Epstein Barr Virus or had a diagnosis of Chronic Fatigue Syndrome?  At
some
> point in your life, in an accident or a fall, etc., did you suffer some
> kind of head or spinal injury?  Did something happen to your vision before
> you were diagnosed?  Did you have poor balance as a child?  What about
> Restless Leg Syndrome? Consider, too, herbicides and pesticides.  Did you
> work with or around them?
> Did you suffer from any health problems because of them?  Did you suffer
> from memory problems and/or depression?`
>
> What we're looking for is the possibility of common ground.  Something or
> some things caused the dopamine to disappear.  Everyone else is
> researching.  Why don't we?
>
> E of the headdress
>
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