 |
 |
Thank you so much Camilla Flintermann wrote: > Norma---seeing a movement disorder specialist is a good idea in any case--- > here's why, from the Parkinson Disease Fndtn: > > "A movement disorders specialist is a neurologist who has taken additional > training in the subspecialty in neurology called movement disorders (as > compared to other subspecialties in neurology). This encompasses disorders > such as Parkinson's disease (and the Parkinson-Plus disorders such as > Shy-Drager Syndrome and Progressive Supranuclear Palsy), essential tremor, > dystonia, Restless Leg Syndrome, Myoclonus and Wilson's disease. Movement > disorders specialists are most often also involved in research and/or > teaching in addition to their clinical concerns and are more typically found > at major medical institutions. Such professionals typically follow a > greater number of patients with these disorders so are thus generally more > experienced in the use of the various medications (ad their combinations) as > compared to a general neurologist, an internist or general practitioner." > > Jeanne Lee-Rosner > PDF-Chicago > > ---------- > Even if you only go for a consultation, to confirm the diagnosis, it can be > helpful. The quote above mentions some of the PD+ syndromes, and it is > true that they usually do not respond for long, if at all, to the PD meds. > Ask the neuro if trying Sinemet rather than an agonist like Requip or a > COMT inhibitor like Comtan might be more diagnostic. And it may be too > soon to rule out Requip, as all PWPs are different in response to meds. > Don't ever hesitate to ask questions of the neuro---and be sure you do > understand--there's no such thing as a "dumb" question about PD ! I always > take a notebook, with questions written down, to be sure I remember > them--and write the answers too. You can also join CARE, the sublist for > CGs of PWPs. I'm posting the info about it right now ! > > >We went to Gordie's neuro for his second visit today. The doctor was not happy > >with the lack of response to Requip. He prescribed comtan and scheduled > >another > >appointment for two weeks from now. If there is no improvement by that time he > >is going to refer Gordie to a movement specialist to be sure we are > >dealing with > >Parkinsons because Gordie does not have a lot of tremor and his MRI did > >not show > >much. He is very stiff through the shoulders and neck and has a tough time > >walking.....he does the typical shuffle. When I asked the doctor what he > >feared > >he mentioned a disease I did not understand. I should have asked for a > >spelling > >I guess. I then asked if there were medicines to treat this disease and he > >said > >no. Gordie didn't hear which I am glad for. BUT, now I need a bit of > >encouragement. Can anyone tell me again that the Requip can still work even > >after 6 weeks of being on it? He has been on 6 mg for a 8 days now. > > > >Norma > > > >---------------------------------------------------------------------- > >To sign-off Parkinsn send a message to: mailto:[log in to unmask] > >In the body of the message put: signoff parkinsn > > Camilla Flintermann, CG for Peter 82/70/55 > Oxford, Ohio > <[log in to unmask]> > > on the web at http://www.geocities.com/camillahf/index.html > and also at http://members.tripod.lycos.nl/genugten/flinterm.htm > > "Ask me about the CARE list for Caregivers of Parkinsonians ! " > And visit the CARE webring at http://www.pdcaregiver.org > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn