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Hi Rick,
First, let me say "Bravo!" This is just the sort of thing we need a lot in
order to build awareness.

Now about controversy.... well, I like to think that the scientests who
have peer reviewed papers detailing encouraging research (search
Medline Plus for Ole Isacson, for example) should rate high in every
Parkinsonian's books.  The other side of the coin is the media headlines
that groups seize upon such as "adult stem cells from fat" hocus pocus
that  is used to "prove" embryonic stem cell research unnecessary.... no
peer reviewed papers to show that stem cells were isolated, no peer
reviewed papers detailing experiments used in animal models to treat an
"animal model parkinson's"....   Important research perhaps, but
paralleling and (thus far) trailing embryonic stem cell research in
neurologic successes.  I hope most Parkinsonian's don't offer these folks
any undeserved credibility and I hope letters and articles presented to
newspapers and politico's point out this important difference.

We don't want any one research over any other simply to avoid
controversy.  We don't want science to abandon any line of research
that might hold a treatment or a cure.  We simply want equal
consideration, funding, guidelines etc. and we do want the Bush govt.
to fund embryonic stem cell research....  Research that currently holds
the most promise by far for Parkinson's, Alzheimers, Diabetes, etc.
Research that would take place under stringent Federal regulation...
Research that would USE donated cells left over in in-vitro fertilization....
Research that would save those cells from incineration in a potentially
life saving role...

We want to respectfully state our case.

We want to receive due respect and consideration in return.

(there's a coupla hunnert wurdz right off the top of a red-neck mekanik's
bean after seizing the soap-box for just a few moments.... I'm sure you
can do much better)

Cheers ............. murray


On 22 May 2001, at 10:44, Rick Hermann wrote:

> Hi List,
> I need some help. After asking the editorial page editor of my local
> newspaper if I could write a column on the stem-cell debate, from the
> perspective of a 50-year-old young onset Parkinson's person, I got the
> go-ahead to write and submit such a piece. Now I have to write it!
>    What I would like to do, in the interests of time and energy, is to
>    draw
> on many of the (noncopyrighted) postings, public testimony, and other
> material and cobble together 700 words intertwined with my own
> experiences. It will mainly be a piece in favor of funding
> government-sponsored stem cell research and the passage of S.723, but
> the newspaper wants that "personal" touch--i.e., me.
>    What are the ethics of "borrowing" a sentence here and there,
> paraphrasing someone else's paragraph. So much has been said so well--do
> I have to reinvent the wheel? Are e-mails copyrighted by virtue of
> existing in written form? I don't want to steal material, I just want to
> get the message accross.
>    You can respond directly to me at [log in to unmask] or to the list.
> Thanks. Rick Hermann dx47, now 50
>

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