hello list:
this survey is well done and easy to do.
i recommend that everyone with web access take the survey.
the URL is:
http://research.soc.staffs.ac.uk/PD/
...............................................................
there has been talk of another survey in relation to PD Causes
this web pagee could serve as a nice model
it would greatly simplify data collection
and reduce list traffic
when a number of people respond to the whole list
with their individual forms
(which compromises privacy for those that do so--)
(and may even influence other responders,
as they read what has come before)
(it is best if objectivity is not compromised)
............................................................
it just occurred to me--
a poll of the list to find out
how many people would actually go to a march in Washington
or to lobby government officials
for embryonic stem cell research funding
--or PD related funding in general
I know some of you have lobbied in the past
some live nearby
We may have the numbers to put effort into getting organized
if not--we would know--alternatves may be possible
do you want to go?
would you go if you could?
what would you want to do or accomplish there?
what obstacles would prevent participation?
Parkinson symptoms
lack of financial resourcces
difficulty traveling
obligations back home
to family
to work
etc...
............................................................
another topic for a survey could be a poll
of each persons feelings about stem cell issues like:
level of interest in research
knowledge of embryonic stem cells
knowledge of embryonic stem cell potential
religious beliefs concerning human life
opinion on using embryonic stem cells for research
opinion on using non-embryonic stem cells for research
opinion on using embryonic stem cells for therapy
opinion on using non-embryonic stem cells for therapy
opinion on using cloned cells for therapy
opinion on reproductive cloning
how does Parkinsons influences these opinions
how do religious or personal beliefs influence these opinions
or to what extent do you think research will benefit you?
............................................................
it would take some team work
a web page
a form writer
an HTML writer
someone to take the data collection
and to total it up
and present it
(through e-mail, the list, or web)
all very much within possibility
............................................................
"art.13" wrote:
>
> Hello,
>
> My name is Anne-Marie Turnbull, and I am conducting a Research Project
> as part of my training to become a chartered Health Psychologist. The
>
snip
> The Participants: I need as many people as possible who have PD and use
> PIEN (PARKINSN/PDUK) (whether you just read the messages or if you post
> messages yourself too) to complete the on-line questionnaire at
> http://research.soc.staffs.ac.uk/PD/
> There are multichoice questions (just check the boxes or use the
> drop-down selection menus), it takes around 15-20 minutes to complete,
> and you can take it at your own pace. I hope that you will find the
> questions thought provoking and interesting to complete.
>
snip
......................................................................
Ray Strand
Prairie Sky Design
-----------------( on the Edge of the Prairie Abyss )---------------
when the sky is clear
the ground is visible
49/dx PD 2 yrs/40? onset
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