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I sent this last weekend, but I haven't seen it posted. Then, again, it might be among the posts, and I missed it. E of the headdress >To: [log in to unmask] >From: "Edith S. Love" <[log in to unmask]> >Subject: Survey Update >Cc: [log in to unmask], [log in to unmask], [log in to unmask] > > >Hi, Everyone, > >Did you know that a PC has a mind of its own? One has to bow before it three times each day in absolute reverence! So far, it is the only way I know of to ensure the cursor will appear and the copy won't disappear into PC Never Never Land! > >I've come to the conclusion that if I don't lose my sanity, some time within the next two weeks, Marco should be getting the first draft. Take it from me, for a pilgrim, this has been an education! And it's become a labor of belief and caring. > >We said we wanted to look at COMMONALITIES. List them, look at them to see what might have occurred in your lives out there that might have also occurred in ours. Maybe for the first time, after Barbara removes identifying information, and Mario finishes the spread sheet(s) we can look at something no one has looked at before. Is it worth it? Might it help in the long run? I more than hope so. > >If our sample is large enough, I'm hoping some researcher somewhere will take our information and apply it to a better understanding of cause. There's that mighty dream that what we offer will move someone or group one step closer to a cure. More than anything, this is one of those times when we don't have to sit and to wait. We can be part of the action! > >I've watched the energy on the list the last week or so. This is the kind of energy we need for this survey. We need interest, caring and the curiosity to know. We need the involvement of support groups wherever they might be. We need numbers! We need everyone's willingness to complete the survey and to send it on to Barbara. I'll give the address again when the survey is posted. > >In the meantime, we thank you all for your support and also thank Maryse for offering to translate the survey into French. > >I wish you all peace this Memorial Day. So many have given so much. >E of the headdress > > > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn