Elaine wrote:
>I have recently become romantically involved with someone who has PD and I
>am trying to find out as much as I possibly can about it.
>
Hi Elaine-- good for you, to learn as much as you can. There are wonderful
resources on the web, including the PIEN "Online" site---
http://www.parkinsons-information-exchange-network-online.com
which has links to other good resources.
If you wish, you can also join CARE, the sub-list of PIEN which is for
caregivers (CGs) of PWPs.
Visit the CARE website for a taste of that list--
http://www.pdcaregiver.org
You can also get lots of free booklets from the national PD organizations,
and they have good newsletters, too. Call and ask to be on their mailing
list, and request their free materials--
National Parkinson Fndtn= 1-800-327-4545
American Parkinson Disease Assn. =1-800-223-2732
APDA Young Onset Info & Referral Center= 1/800-223-9776
Parkinson Disease Fndtn.= 800-457-6676
You can also access several websites where PD experts answer your questions--
1. This website is maintained by the U. of Cincinnati, Case Western Reserve
U., and Ohio State U. Among other things, you can ask questions of
doctors in many specialties. Ask Dr. Arif Dalvi (Peter's neuro) about PD.
Click on the Ask an Expert section, then click on Parkinsons in the list
of diseases. You'll get a
>brief answer in a couple of days.
>http://www.netwellness.org/
**********
2. The Ask Dr Lieberman site .This page of the NPF website is a good
place to get
information, similar to the Ask An Expert page on the NetWellness site I
have recommended. Please make use of it when you are curious, need info to
prepare for a neuro appointment, etc.
http://www.parkinson.org/drindex.htm
It is simple to "join", and you can also read messages without joining.
When you search for a word, you will get a list of messages, and if you
highlight one and click on "view message" it will appear.
***********
3.
You can add another to this list: The Parkinson's Disease Foundation's
website also has an Ask the Expert section. Most questions are answered
within one business day while others may take up to two or three business
days. The site's address is: http://www.pdf.org.
*********
4. "Ask The Doctor"
If you are a Patient With Parkinson's (PWP), an individual
with symptoms, newly diagnosed, a caregiver, or work in the
medical field and have questions about living with PD or
neurosurgical procedures, Doctor Robert Iacono would like
to answer your questions. Just send an E-mail to Doctor
Iacono at the Neuroscience Clinic: <[log in to unmask]>
**********
Glad you found us, and let us know how we can help, as you get into this in
more detail.
Camilla Flintermann, CG for Peter 83/70/55
Oxford, Ohio
<[log in to unmask]>
on the web at http://www.geocities.com/camillahf/index.html
and also at http://members.tripod.lycos.nl/genugten/flinterm.htm
"Ask me about the CARE list for Caregivers of Parkinsonians ! "
And visit the CARE webring at http://www.pdcaregiver.org
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