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Rayilyn, Well said ! I fired "my" second neurologist when he told me that there was no pain associated with PD, and that I would have to see my GP for any pain meds. He may have the title of "Neuro", but he damn sure didn't have any understanding of what we go through with PD. Wonder if a Dr. with PD would be more helpful to us with "rigor mortis", Rob ----- Original Message ----- From: Rayilyn Brown <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, June 02, 2001 10:43 PM Subject: Re: PWP stars invite "mere mortals" on stage?? > Ivan, I can't agree more. Altho I'm all for all PDs doing whatever they can > career wise, I think they have a responsibility to help explain what a horrid > disease this is and most likely will be for them. When I was first diagnosed > a friend of my mother commented "At least it's not painful". Ha Ha. I'm no > sissy, I taught in inner city LA while on chemo, 20 yrs ago, and PD is much > worse. It is a battle you can't win and it destroys your life (only my > opinion) It is "rigor mortis" without benefit of death plus a bunch of other > ugly stuff, but I look like the picture of health, and people think it's not > so bad, there are meds (which don't work for me) and of course brain surgery > and that if I were a Christian Scientist I could cure myself or a Mormon, I > chose this before birth. I don't want to be a heroine anymore as I was > considered when I "beat" ovarian CA. I just want the truth to get out and > celebs and politicos could help. Reno isn't bothered by her shaking, but > mine drives me nuts, it never stops. Okay, enough whining.. . just tell it > like it is. > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn