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Ivan, My dystonia is also due to the wearing off of Sinemet. I think sometimes people are too quick to blame Sinemet for their probems when they are actually under/over medicated. Greg 48/35/35 ----- Original Message ----- From: "Ivan M Suzman" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, June 03, 2001 8:28 PM Subject: Re: PWP stars invite "mere mortals" on stage??/dystonia blues > Hi Rayilyn, > > I think we all tend to wonder if the Sinemet is to blame > when we go through various symptoms. > > My foot muscles and toe muscles can definitely be dystonic, > by which I mean curled down , stiffened and inflexible > toes, while meanwhile the whole foot itself is twisting in and rotating > at the ankle. Sometimes the big toe goes up at the same time. > > I saw Michael J. Fox massaging his toes through his loafer at > the PAN forum in June, 2000. I wondered if he had toes bending > like I just described for myself. > > For me, this dystonia in the foot and toes is not Sinemet, > but is the underlying PD showing up, revealed when the medi- > cations wear off. Only when I am low on dopamine does PD > rearing its ugly head. Sinemet UNlocks and relaxes my joints > and muscles, which otherwise pull and tug , painfully, if I am either > unmedicated or undermedicated. > > Too much Sinemet makes me hot, wobbly and sleepy, but does not > give me dystonia in my toes and feet. > > Ivan > > > > ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 51/39/36 [log in to unmask] :-) > Portland, Maine land of lighthouses deg. F :-) > ******************************************************************** > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn