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Dear All

Due to the extent of the response to this questionnaire (answers are
still coming in!),
I will be keeping it on-line for another week.
If you would like to participate in this research
(looking at how membership of the internet community can
influence quality of life in PD), but have not yet completed the on-line
questionnaire,
then please visit
http://research.soc.staffs.ac.uk/PD/
The original information about this research project is included below
for anyone who may have missed it.

I would like to take this opportunity to say a big "Thank you" once
again to all those who have completed the questionnaire and e-mailed me
their stories. The Parkinson's Disease Society and the Parkinson's
Alliance have both expressed an interest in the findings and a summary
will be sent to all who have requested one by the 20th July.

Kind Regards
Anne-Marie
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original posting about this research....

Hello,

My name is Anne-Marie Turnbull, and I am conducting a Research Project
as part of my training to become a chartered Health Psychologist. The
project is supervised by Professor David White at the Centre for Health
Psychology, Department of Psychology, School of Sciences, Staffordshire
University, England, UK. (www.staffs.ac.uk/sciences/psychology)

The Project: I’m interested in how Internet Communities can influence
health-related quality of life for people with Parkinson’s disease (PD).

It is important to get the views of people with PD in order to get a
better understanding of how people with PD manage their everyday life,
and how the Internet fits in to things.

The Participants: I need as many people as possible who have PD and use
PIEN (PARKINSN/PDUK) (whether you just read the messages or if you post
messages yourself too) to complete the on-line questionnaire at
http://research.soc.staffs.ac.uk/PD/
There are multichoice questions (just check the boxes or use the
drop-down selection menus), it takes around 15-20 minutes to complete,
and you can take it at your own pace. I hope that you will find the
questions thought provoking and interesting to complete.

The Benefits of this Research: I believe that Internet support groups
such as PARKINSN/PDUK offer a unique and valuable way to help people
cope with
life with PD. Through this research survey I hope to find out more about

exactly what this service means to you and how you use it. This will
enable me to write a report on the benefits of using the Internet to be
submitted to groups and organisations working with people with PD and,
ultimately, to help them to offer more support to reach more people with

PD and their carers.

The Assurance: Participation in this research survey is totally
voluntary. It is completely anonymous and confidential. You will not be
asked to give your name or any details that could identify you. This
research is completely independent and for academic purposes only. If
you have any questions or comments about this research, I would be happy

to answer them, please e-mail me, Anne-Marie, at: [log in to unmask]

Thank you for your time and interest in this research. I understand that

many of you will not be able to spare the valuable time or energy to
complete the questionnaire, but if you can and you would like to
participate in this research survey, please click on this website to
complete the questionnaire:
http://research.soc.staffs.ac.uk/PD/

This website will be active until June 11th, when it will be taken
offline at the end of the data collection phase of this research. The
results will then be analysed and a summary of the research will be
available to anyone who would like a copy. If you would like to receive
a summary of the research findings, please e-mail me at
[log in to unmask] and I will ensure that you receive your copy by July

20th.

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To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn