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Saving Milly: Love, Politics, and Parkinson's Disease
by Morton Kondracke, Michael J. Fox
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http://www.amazon.com/exec/obidos/ASIN/1586480375/theeconomist/104-9837176-8746302

Morton Kondracke, author of “Saving Milly”, is executive editor
of Roll Call, part of The Economist Group.

Here is a Review by Charlotte Johnson-Wahl.

May 24th 2001
From The Economist print edition
Saving Milly: Love, Politics, and Parkinson’s Disease.
By Morton Kondracke.
PublicAffairs; 300 pages; $25 and £17.99
MORTON KONDRACKE, an American political journalist, is a
practised observer of the Washington scene. He lives there with
his remarkable wife, Milly, who is dying of Parkinson’s disease.
To read “Saving Milly”, his account of her struggle, is a harrowing
experience, though not always in ways he intended.

It is an honest but needlessly frank story of marriage, illness,
anger and love, set against a battleground of fund-raising to
find a cure. In some detail he describes his conversion from
striving, successful media personality—a self-confessed rotter
who wanted to marry someone grander than Milly and who
was irked when she first fell ill—into a saintly spouse
ungrudgingly tending to a failing wife.

Their story is in many places uplifting, and it would be inhuman
not to want to sympathise. But with all confessional books of this
kind there is a serious problem of tone and intent. Who wants to
read about his “slow-dancing” Milly to the bathroom to change
her “disposable underwear”, or about her drooling, her gagging
and their jokes about enemas?

Mr Kondracke’s is not the only recent literary blossom from
a newly heroic adult-nappy changer. In “Elegy for Iris”, John
Bayley, a literary critic and professor of English, similarly
assaulted readers with the horrendous realities of looking after
his wife, Iris Murdoch, a distinguished novelist, when, suffering
from senile dementia, she could no longer look after herself.

Need either writer have so encumbered us with the detail of their
wives’ bodily failures?

As to intent, Mr Kondracke’s Milly was “a master of her universe”,
“a dynamo” who got him into Alcoholics Anonymous and off drink.
Then, with illness, things change again. Soon, we read, he is
completely at her beck and call, her champion. Is he now fulfilled
or frightened to be indispensably on top, the hand that rocks the
cradle? For a husband or wife to feel wrenching conflict when
caring for a dying spouse is completely to be expected. Isn’t
such self-revelation best left in a diary to be read, if at all, after
death?

This reviewer knows from experience that Parkinson’s is a monster.
Milly is particularly unlucky in having an unusually vicious form
known as Parkinson-plus syndrome. It is swifter in its destruction
of the central nervous system and responds poorly to symptomatic
palliation. Milly is to be pitied. But the Kondrackes have many
friends and even a prayer group on their case. She is fortunate,
too, in having a feisty, stick-around husband, and the attention
of two permanent carers.

Many Parkinson’s sufferers will warm to this book’s brave, upbeat
approach. Yet, though the sections on politicking for more research
money are unquestionably important, this reader did not find that
“Saving Milly” held larger human lessons. Mr Kondracke calls his
disease campaigning “God’s work”, and reports that God told him
to “Take care of Milly”. Heavy name-dropping—from the White
House down through high places in Hollywood and back up to
God—is both dazzling and sad. Mr Kondracke knows all these
people and needs God too?

For plenty of us with it, Parkinson’s is bad news all the way down.

Despite the Kondrackes’ valiant efforts, Milly continues to weaken
and will soon die because there is no cure. So, to end on a less
bitter note, if “Saving Milly” can prompt the giving of money for
more Parkinson’s research, then it will have been worth the effort
of writing and reading—most of it.

http://www.economist.com/books/displayStory.cfm?Story_ID=631014&CFID=2304161&CFTOKEN=51209889

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