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Hi, Everyone,

Just to let you know that copies of the survey were sent to Mario and Michiel
late yesterday afternoon.  I'm waiting for confirmation.

Michiel will critique, make changes he deems necessary, etc. When he is
finished, he will send the survey to Mario who will enter the numbering
system of his choice to go along with the spread sheet(s).  When Mario is
finished, the survey will return to me one more time.  If we all agree the
survey is a go, copies will be sent to Michiel, Mario(if changes
occur)PIEN, Maryse who will translate a French copy, and Barbara Patterson.

If there's anyone else out there who wants to translate a copy, please let
me know.  There are no boundaries for the PD demon.  It invades in every
language.  What we need to discover are the similarities we share!

Whether you complete the survey on your own or have the assistance of a
caregiver/family member, we urge you to participate.  It will take a bit of
time, and it asks some pertinent questions.  Your name appears only once,
and Barbara will remove that.  Your privacy(and ours)is essential.

Aside from your personal commitment to complete the survey, we need to
contact those who have no PC's.  If you know of someone or of a support
group in your area, please invite him/her/them to join us. A downloaded
copy can be given to them, and they can make additional copies for
themselves.  There are also a number of PD organizations whose memberships
should also be notified.  I will indicate the WHEN TO DO IT.  Do I have a
volunteer who will make the contacts?

Finally, we make no claim to be professionals in this field.  We
acknowledge that we are caring, curious and committed to discovering
commonalities within the PD family!
E of the headdress
P. S. Since I began this project, we have lost a number of our cyber
brothers.
I would like to take this opportunity to celebrate their lives.  May smiles
come upon faces when they are remembered, and may the love and the healing
of the headdress encompass their families.

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