>>>Email 1
>>
>>COVER SHEET FOR HOW DID WE GET HERE ANYWAY SURVEY
>>
>>>The idea for the HOW DID WE GET HERE ANYWAY SURVEY formed as the result of
>a post (seen below) to PIEN on May 9, 2001.
>>
>>Dear List Family,
>>
>>Have you ever taken the time to think about how we got on this PD/PD+ road
>>we travel? Have you ever wondered what illness, what accident, what
>>environmental cause brought us here?
>>
>>This is a List Family thing, and I need your help. I would like to see how
>>many of us may have had the same things happen to us that might have led us
>>on this path. I'm interested in numbers-not names, etc. I even have my
>>med team interested in looking at the information which will go to the List
>>Family first.
>>
>>For example: Have you ever had mono or an illness, even a childhood
>>disease with a very high fever? Have you ever been diagnosed with the
>>Epstein Barr Virus or had a diagnosis of Chronic Fatigue Syndrome? At some
>>point in your life, been in an accident or a fall, etc., did you suffer some
>>kind of head or spinal injury? Did something happen to your vision before
>>you were diagnosed? Did you have poor balance as a child? What about
>>Restless Leg Syndrome? Consider, too, herbicides and pesticides. Did you
>>work with or around them? Did you suffer from any health problems because
>of them?
>> Did you suffer from memory problems and/or depression?`
>>
>>What we're looking for is the possibility of common ground. Something or
>>some things caused the dopamine to disappear. Everyone else is
>>researching. Why don't we?
>>
>>E of the headdress
>>
>>Everyone who responded to the post with information had his/her
>contributions included
>>in the survey wherever possible. Mario and Michiel not only contributed
>to the survey, they volunteered to assist in its development. Michiel and I
>will work on the survey; Mario will do the spread sheet(s) and Maryse
>offered to translate the survey into French for some of our international
>members. What you see is a concerted effort. We are a team, and we are
>looking for commonalities!
>>
>>Any success we achieve is success for everyone. Anything we discover is
>discovery for all of us.
>>
>>We urge you to participate. In addition, share copies of the survey with
>other PDers and support groups in your areas. Let's be counted!
>>
Developed by,
>> Edith Love
>> Mario A. Gonzalez
>> Marco De Michiel
>> French Translation,
>> Maryse Schild
>>
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