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I believe the latest slogan is "in our lifetime". And let us not forget the wise words from the Neuros: "you could not have chosen a better time to get PD". My "5 years" come due in December 2001. Mario ----- Original Message ----- From: "janet paterson" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, July 07, 2001 2:12 AM Subject: "The Big Lie" - cross-posted > hi all > > the following is cross-posted from the mgh pd webforum > > janet > > ---------------------------------------------------------- > Author Topic: " The Big Lie " > Chy7 posted 07-07-2001 12:14 AM > ---------------------------------------------------------- > Many doctors tell their new PD patients, don't worry you > don't die from Parkinson's Disease. I just read dozens of > people's remarks on the Stem Cell Petition who say > otherwise. You may die from something else before PD gets > you but as of now it is going to get you someday. Chy7 > > ---------------------------------------------------------- > lc_lil posted 07-07-2001 12:40 AM > ---------------------------------------------------------- > Hey Chy, > > Dropping in to cheer us up eh? Well another big one was > the "cure in 5 years"; hope the new and extended > prediction of "cure in 10" isn't. But hey they have good > intentions. > > lil > > ---------------------------------------------------------- > Chy7 posted 07-07-2001 01:02 AM > ---------------------------------------------------------- > I knew you would be first. Also 3 years left on the 5 it > is going to happen wait and see. > > ---------------------------------------------------------- > LynnZ posted 07-07-2001 04:18 AM > ---------------------------------------------------------- > Why do so many neurologists know so little about PD? > > ---------------------------------------------------------- > janet313313 posted 07-07-2001 04:36 AM > ---------------------------------------------------------- > neurologists are 'victims' of the same lack of > parkinson's awareness that has shrouded us all > > until 10 years ago or so > there was no public disclosure of pd > > people with pd concealed their symptoms while they could, > and when they couldn't, they went into hiding, > figuratively and literally > > put it down to shame, despair, embarrassment, lack of > acceptance, clinical depression, lack of support etc > > levodopa, the gold standard for symptom relief, was only > discovered to be effective with pd 30-ish years ago > > we are all still learning how to best make use of it, > plus all the other meds and procedures which have come > along since > > hiding pd in the closet may bring some comfort to those > tied up in shame knots, > but dragging it out into the light is the only way to > dispel ignorance, encourage better support and > treatments, and raise awareness and demands for research > > and dragging pd out into the light is precisely what we > are doing here and now > > janet > > ---------------------------------------------------------- > http://neuro-mancer.mgh.harvard.edu/ubb/Forum71/HTML/004820.html > > > janet paterson: an akinetic rigid subtype, albeit perky, parky . > pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email: [log in to unmask] . > snail mail: 375 Country Street, Apt 301, Almonte, Ontario, Canada, K0A 1A0 . > a new voice: the nnnewsletter: http://groups.yahoo.com/group/janet313/ . > a new voice: the wwweb site: http://www.geocities.com/janet313/ . > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn