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Dear Janet . Wow , what a mouthful. How right you are. The neuros know so little because they dont take the time to understand the biochemistry of PD. Oh, the poor dears were so rushed through med school , so why take the time now. Who 's going to pay them to get educated now . They already have the shingle to PRACTICE. The pharmaceutical houses sure arent going to bother educating the public - they would lose too much in revenue if they did that. For over 20 years the information on PD symptom relief has been out there- just check NIH ,Medscape, etc. on the net. Dr Perlemutter runs a symptomic relief program thats helps NOW instead of waiting for all of the promiises of the CURE. Dr. George Birkmayer didnt just fall of the turnip truck with good relief for the PD victim without causeing the harm that Sinemet does to the brain. We dont have to be victimized by ill-informed doctors who practice. Just read the net ! It is out there. Relief!! Rob ----- Original Message ----- From: "janet paterson" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, July 07, 2001 3:12 AM Subject: "The Big Lie" - cross-posted > hi all > > the following is cross-posted from the mgh pd webforum > > janet > > ---------------------------------------------------------- > Author Topic: " The Big Lie " > Chy7 posted 07-07-2001 12:14 AM > ---------------------------------------------------------- > Many doctors tell their new PD patients, don't worry you > don't die from Parkinson's Disease. I just read dozens of > people's remarks on the Stem Cell Petition who say > otherwise. You may die from something else before PD gets > you but as of now it is going to get you someday. Chy7 > > ---------------------------------------------------------- > lc_lil posted 07-07-2001 12:40 AM > ---------------------------------------------------------- > Hey Chy, > > Dropping in to cheer us up eh? Well another big one was > the "cure in 5 years"; hope the new and extended > prediction of "cure in 10" isn't. But hey they have good > intentions. > > lil > > ---------------------------------------------------------- > Chy7 posted 07-07-2001 01:02 AM > ---------------------------------------------------------- > I knew you would be first. Also 3 years left on the 5 it > is going to happen wait and see. > > ---------------------------------------------------------- > LynnZ posted 07-07-2001 04:18 AM > ---------------------------------------------------------- > Why do so many neurologists know so little about PD? > > ---------------------------------------------------------- > janet313313 posted 07-07-2001 04:36 AM > ---------------------------------------------------------- > neurologists are 'victims' of the same lack of > parkinson's awareness that has shrouded us all > > until 10 years ago or so > there was no public disclosure of pd > > people with pd concealed their symptoms while they could, > and when they couldn't, they went into hiding, > figuratively and literally > > put it down to shame, despair, embarrassment, lack of > acceptance, clinical depression, lack of support etc > > levodopa, the gold standard for symptom relief, was only > discovered to be effective with pd 30-ish years ago > > we are all still learning how to best make use of it, > plus all the other meds and procedures which have come > along since > > hiding pd in the closet may bring some comfort to those > tied up in shame knots, > but dragging it out into the light is the only way to > dispel ignorance, encourage better support and > treatments, and raise awareness and demands for research > > and dragging pd out into the light is precisely what we > are doing here and now > > janet > > ---------------------------------------------------------- > http://neuro-mancer.mgh.harvard.edu/ubb/Forum71/HTML/004820.html > > > janet paterson: an akinetic rigid subtype, albeit perky, parky . > pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email: [log in to unmask] . > snail mail: 375 Country Street, Apt 301, Almonte, Ontario, Canada, K0A 1A0 . > a new voice: the nnnewsletter: http://groups.yahoo.com/group/janet313/ . > a new voice: the wwweb site: http://www.geocities.com/janet313/ . > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn