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Hello Rob. How are you doing on your vitamin regime? I take it you still do not use Sinemet? You mentioned doctor Perlmutter. I used to go to him when I was in Florida for the winters. He is a good neurologist. [log in to unmask] ----- Original Message ----- From: "Schaaf Angus / Meadow Creek Ranch" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, July 07, 2001 6:41 PM Subject: Re: "The Big Lie" - cross-posted > Dear Janet . > Wow , what a mouthful. How right you are. The neuros know so little because > they dont take the time to understand the biochemistry of PD. Oh, the poor > dears were so rushed through med school , so why take the time now. Who 's > going to pay them to get educated now . They already have the shingle to > PRACTICE. > The pharmaceutical houses sure arent going to bother educating the public - > they would lose too much in revenue if they did that. > For over 20 years the information on PD symptom relief has been out there- > just check NIH ,Medscape, etc. on the net. Dr Perlemutter runs a symptomic > relief program thats helps NOW instead of waiting for all of the promiises > of the CURE. Dr. George Birkmayer didnt just fall of the turnip truck with > good relief for the PD victim without causeing the harm that Sinemet does to > the brain. > We dont have to be victimized by ill-informed doctors who practice. Just > read the net ! It is out there. Relief!! Rob > > > ----- Original Message ----- > From: "janet paterson" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Saturday, July 07, 2001 3:12 AM > Subject: "The Big Lie" - cross-posted > > > > hi all > > > > the following is cross-posted from the mgh pd webforum > > > > janet > > > > ---------------------------------------------------------- > > Author Topic: " The Big Lie " > > Chy7 posted 07-07-2001 12:14 AM > > ---------------------------------------------------------- > > Many doctors tell their new PD patients, don't worry you > > don't die from Parkinson's Disease. I just read dozens of > > people's remarks on the Stem Cell Petition who say > > otherwise. You may die from something else before PD gets > > you but as of now it is going to get you someday. Chy7 > > > > ---------------------------------------------------------- > > lc_lil posted 07-07-2001 12:40 AM > > ---------------------------------------------------------- > > Hey Chy, > > > > Dropping in to cheer us up eh? Well another big one was > > the "cure in 5 years"; hope the new and extended > > prediction of "cure in 10" isn't. But hey they have good > > intentions. > > > > lil > > > > ---------------------------------------------------------- > > Chy7 posted 07-07-2001 01:02 AM > > ---------------------------------------------------------- > > I knew you would be first. Also 3 years left on the 5 it > > is going to happen wait and see. > > > > ---------------------------------------------------------- > > LynnZ posted 07-07-2001 04:18 AM > > ---------------------------------------------------------- > > Why do so many neurologists know so little about PD? > > > > ---------------------------------------------------------- > > janet313313 posted 07-07-2001 04:36 AM > > ---------------------------------------------------------- > > neurologists are 'victims' of the same lack of > > parkinson's awareness that has shrouded us all > > > > until 10 years ago or so > > there was no public disclosure of pd > > > > people with pd concealed their symptoms while they could, > > and when they couldn't, they went into hiding, > > figuratively and literally > > > > put it down to shame, despair, embarrassment, lack of > > acceptance, clinical depression, lack of support etc > > > > levodopa, the gold standard for symptom relief, was only > > discovered to be effective with pd 30-ish years ago > > > > we are all still learning how to best make use of it, > > plus all the other meds and procedures which have come > > along since > > > > hiding pd in the closet may bring some comfort to those > > tied up in shame knots, > > but dragging it out into the light is the only way to > > dispel ignorance, encourage better support and > > treatments, and raise awareness and demands for research > > > > and dragging pd out into the light is precisely what we > > are doing here and now > > > > janet > > > > ---------------------------------------------------------- > > http://neuro-mancer.mgh.harvard.edu/ubb/Forum71/HTML/004820.html > > > > > > janet paterson: an akinetic rigid subtype, albeit perky, parky . > > pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email: [log in to unmask] . > > snail mail: 375 Country Street, Apt 301, Almonte, Ontario, Canada, K0A 1A0 > . > > a new voice: the nnnewsletter: http://groups.yahoo.com/group/janet313/ . > > a new voice: the wwweb site: http://www.geocities.com/janet313/ . > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn