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----- Original Message ----- From: "joan carol urquhart" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, July 14, 2001 8:19 AM Subject: Our first MDS visit > Goodmorning, > > Last week I asked the list for advice > regarding a first time visit to a Movement Disorder Specialist. > Last Wed. during our visit, we found discernable differences > between the MDS neurologist and the other neurologists we've seen. > One of the MDS's FIRST insights about my mother > (who is 80/ pd for 10 years) > was that she was visibly depressed, "more depressed than you realize". > She also told us that most pd patients who come to her > are over-medicated. > Happily for us, she took my mother off of her agonist (miripex), > off domperidone and coalesce, > increased her daily simemet slightly > and prescribed paxil, an anti-depressant. > (Does anyone have experience with paxil?) > She recommended tai chi > (why has no other neurologist recommended exercise?). > and her nurse gave us a computer printout of the doctor's suggestions > at the end of the visit. We never felt rushed nor ignored. > > I am writing to highly recommend seeing an MDS > for medical suppport with pd, for those who haven't yet. > But check with your regular neurologist and family doctor > a few days in advance of the visit > to insure that your paper records are forwarded. > In our case, they hadn't been sent. > > To the one person who took the time to answer my question on-list > out of a membership list of 2000, amidst the flurry of postings about list > content, > thanks again Murray for your advice. > To others who post everything from hard core pd info, > to computer nurd info, to poetry and info about depression, > I say thank you all: all of it adds to a portrait of pd that may trigger > insight. > For those who object, lets attend to the message headers, > posting accurate message titles with pd/non-pd designations > rather than censuring the human side of pd. > > Joan > (in sunny Ontario > where 2.5 minutes of delete time per day > is a small price to pay for membership in a worldwide pd community) > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn