 |
 |
I have what I think is a great idea. The list should only be used to post messages, ask questions, share information regarding PD. If it is not used in that manner, if it is used to converse with another member of the list, then it becomes a chat room. To contact another member of the list to share some tidbits, an E-mail to that person is all that is needed. To see if the person is online and wants to talk, then a program such as YAHOO MESSENGER or MSN MESSENGER should be used. That is what we use at work to keep in touch with one another, ask somebody how they are doing, are they busy, are they free. That way nobody else has to go through the trouble of opening the mail, reading it, closing it, and deleting it. You can obtain either one of these programs for free. If you have a problem doing that, contact me, and I will help you with the download and install. I will even call you and walk you through the process. Everyone of us has something that we can contribute to this list. I mean what I said, I will call you and walk you through the program download and install. As long as the roots are not severed All is well, all will be well, in the Garden Mario ----- Original Message ----- From: "Marla Gillham" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, July 08, 2001 8:15 PM Subject: Change is not only inevitable, it's GOOD for you, me, us > Jo Ann... and all "Others" with the same attitude: > > This email doesn't mince words. I'm laying it all out here, and the reason > is: > > This list needs to think seriously about whether it really DOES serve the > Parkinson's community. It seems to me that it does not, although I hope it > WILL. Before you begin, my words in caps below are not "yelling", they are > merely emphasis. I am a lively, passionate woman, and I have only caps to > highlight the important concerns I feel about this subject. If you > interpret it as "yelling", you're absolutely wrong. > > First and foremost: the name of this list is the PARKINSON'S INFORMATION > EXCHANGE NETWORK. > > At present, this is only partly true... it is also quite clearly the > personal chat room of, I suspect, a rather small proportion of the total > list. > > I think all those with "Jo Ann's" attitude believe you have some sort of > "right" to trash others who are GENUINELY [and repeatedly] pointing out a > PROBLEM! It seems that those who like it the way it is fail to realize > something: > > This list reaches many many PWP. Clearly it is recognized as an excellent > source of info, or people [like myself] would not be drawn to it. While the > original intent of the listowner may be other than that being requested by > MANY over time [including myself], it may be that, IF the intent of the list > is to SERVE the PWP community as an INFORMATION EXCHANGE NETWORK, a > re-evaluation of intent may be in order. > > Change is natural and inevitable. Without change EVERY system becomes > ingrown, stagnant, decadent... as increasingly the few "exclude" via their > forceful voice and the excluded leave for the clear, sweet air of > open-minded and creative discourse. > > I have read enough vituperative slams to see WHY [apparently] quite a few, > very knowledgeable FORMER posters to this list have left. To some, their > absence is keenly felt. I have been told that many who had MUCH INFORMATION > TO EXCHANGE left out of frustration with the "chatters". > > I fail to comprehend why it is so inconvenient, to those who use the list > like a chat room, to reply ONLY to the person who asked for answers. A few > days ago I sent a message describing basic e-etiquette. Why is it to much > to ask this of "you"? Why do "you" insist on staying fixed in the past? > Haven't you learned yet from PD to > > JUDGE NOT > lighten up > ACCEPT CHANGE GRACEFULLY > acknowledge that united we stand, divided we fall > LIVE IN THE NOW > etc. > etc. > etc. > > So here's the gig: Slam the hell out of me because I have the COURAGE to > call "you" on this most unfriendly and exclusive attitude and behavior and I > will sign off so fast it'll make your head spin! I KNOW I've contributed > useful info to this list, far less than I would have if I hadn't been > wasting so much time with the delete key... Are you sure that I don't have > some REALLY good info to share? I'm actually investigating something right > now that I think has great promise. Frankly, I'm reluctant to "share" with > the entire list because of what I'm willing to bet are a few, loud, > unfriendly, nay... NASTY voices! > > "You" don't want to change, or even be respectful? Well what kind of role > models are "you" for those who come after us? OR "diplomats" for PWP? > > Quite simply, when you hear a request over and over and over and you > deliberately ignore it rather than trying to find creative solutions you > have demonstrated something ALL OF US EXPERIENCE EVERY DAY AND I WOULD WAGER > FIND ABHORRENT, namely > > Narrow-mindedness and prejudice. > > So, how about putting down the gloves and trying to find solutions? I would > rather "stay" but I will CERTAINLY leave if there aren't some serious, > constructive replies to this posting, NOT DIRECTED AT ME BUT RATHER TO THE > ENTIRE LIST! DO WE GROW TOGETHER AND FIND HEALING, AND ACKNOWLEDGE THE > VALUE AND NECESSITY OF CHANGE? OR DO WE DO WHAT NON-PD PEOPLE DO TO US: > > POINT FINGERS AND STARE AT THE "BAD" PERSON WHO MUST BE ON DRUGS? > > Think carefully, those of you who want to slam me and others, lately Katie > who was VERY diplomatic in her message. Open your minds, open your hearts, > open your SPIRITS, and look for SOLUTIONS that will keep us together and > GROWING STRONGER!!! > > Think carefully before you slam me for my position. I AM ONE OF YOU more > than not. Would it make a difference to you if I shared my own, > particularly devastating tale? Would you feel I was more "like you"? Would > it help if we ate hotdogs and potato salad together at a 4th of July picnic > for PWP? Maybe, but you're just going to have to trust me on this one... I > AM ONE OF YOU AND MY VOICE COUNTS AND DESERVES RESPECT. My Heart is already > heavy with the weight of living with PD.... How I LONG for a TRUE SUPPORT > GROUP! One which listens to each and all... and is INCLUSIVE! > > The sniping has to stop. Don't you see what you're doing by refusing over > and over to consider the same plea? If the plea were coming from your > partner/spouse you'd have been divorced a long time ago! > > IS this list an "exclusive" club, or is it an "inclusive" list "serving the > Parkinson's community".... as a TRUE Information Exchange Network? > > > Marla L. Gillham > PO Box 343 > Yachats, OR 97498-0343 > 541.547.4090 > [log in to unmask] > ----- Original Message ----- > From: Jo Ann Coen <[log in to unmask]> > To: <[log in to unmask]> > Sent: Saturday, July 07, 2001 4:47 PM > > > > Katie - I think the policing of this list belongs to the list owners and > > not someone who MIGHT be offended . Jo Ann > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn