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Yes we are aware of that. The movement disorder specialist told us to try the stronger dose of sinemet and if that didn't work Gordie did not have true PD Gordie is 66. He was diagnosed at 65 and he has probably had it for about 8 years when we thought he had arthritis. By the way...today we had a picnic. Gordie didn't feel 'quite right' when I took him outside. He seemed to perk up and ate well. After about 2 hours I looked over and he seemed to be fading out. I went over and asked if he wanted to go back in the house.He took awhile to answer and then said yes. He pointed to his head and said he felt blank. He had quite a time getting to his feet but we had 4 guys helping. Once he got in the house he seemed himself. Can anyone help me as to what he meant when he said he felt blank and does anyone know what this might indicate? I thought we would not have any more episodes involving his head/brain once he went off the sinemet. Norma Camilla Flintermann wrote: > Dear Norma---I assume you are aware that PD meds do not "work" for patients > who have one of the PD+ syndromes. Has he been evaluated for that ? Has > he seen a Movement Disorders Specialist (MDS)neuro? Your signature does > not show Gordie's age or age at time of diagnosis, BTW, and those are very > helpful in knowing how to respond to questions/problems. > Just a thought---- > > >We stopped because they were making him stoned. He slept all of the time > >and was > >receiving NO benefits from the meds at all. At present he is not on any > >medication for PD. Nothing worked so I didn't think he needed to be on them > >since they had side effects which affected Gordie's quality of life. We are > >trying Rob's supplement program right now. > > > >Norma > > Camilla Flintermann, former CG for Peter 83/70/55 > Oxford, Ohio > <[log in to unmask]> > > on the web at http://www.geocities.com/camillahf/index.html > and also at http://members.tripod.lycos.nl/genugten/flinterm.htm > > "Ask me about the CARE list for Caregivers of Parkinsonians ! " > And visit the CARE webring at http://www.pdcaregiver.org > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn