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Diane, sorry I missed some of the letters you wrote before. Is this the surgery for the brain stimulators that are made by the pacemaker folks, Medtronics? Am interested in hearing from folks that have had this procedure and how far advanced you were in PD before you are allowed to have the surgery? Thanks. Dena Diane Leeds wrote: > Dear List Members, > > This is a short follow-up to the letter that I wrote to the list about one > month ago after I came home following my second DBS Surgery. The hospital > where I had it done only allows the surgery to be done on two separate > occasions. > > Well anyway since the 6th of July when I went in for an adjustment on the > stimulators, I started cutting back on my medicine again. There was not too > much more to cut because I had already worked down to a very small dose > daily. (compared to what I was taking before the surgery) Well I don't know > any other way to say it but SINCE THE 8TH OF JULY I HAVE NOT TAKEN ANY > PARKINSON MEDICINE!!!!!!!!! That is two weeks ago yesterday. I finally > came to the conclusion that the little amount of sinemet that I was taking > wasn't doing much good. And cutting out the medicine completely has enabled > me to eat protein again(I had cut back to practically no protein at all > before the surgery). I really didn't realize how much I missed it and how > important it is for my body. So now(you may wonder) what Parkinson symptoms > do I still have?. Well I have one that I never had before(although I know > it is quite common, just not for me) and that is an overproduction of > saliva. Also my mouth quivers sometimes which it used to do about five > years ago. I am stilll tired, but feeling better than I ever thought I > would again. > > Believe me, my friends, I know that the above described symptoms are nothing > compared to what I had before and what some of you suffer with everyday. > In a way I feel bad writing this because I know that there are a lot of > people out there who could probably benefit from this surgery, but because > of finances and many other reasons, are unable to have it. I am so sorry > for any of you that are described in the previous sentence. > > I won't have another adjustment for several weeks now, but I will let you > all know what things are like then. I know I am very fortunate and blessed > to have been able to have the surgeries. > > Sincerely, > > Diane Leeds > [log in to unmask] > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn