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Carmilla- The original message that you sent to Norma contained the reference to PD+ syndromes.  Since I am new to this guessing game, could you tell me what these syndromes are?  Thanks for explaining what may be the obvious.  Gene.  
  
----- Original Message -----
From: Camilla Flintermann
Sent: Saturday, July 21, 2001 8:12 AM
To: [log in to unmask]
Subject: Re: stopping meds abruptly
  
Dear Norma---I assume you are aware that PD meds do not "work" for patients
who have one of the PD+ syndromes.  Has he been evaluated for that ?  Has
he seen a Movement Disorders Specialist  (MDS)neuro?  Your signature does
not show Gordie's age or age at time of diagnosis, BTW, and those are  very
helpful in knowing how to respond to questions/problems.
Just a thought----

>We stopped because they were making him stoned. He slept all of the time
>and was
>receiving NO benefits from the meds at all. At present he is not on any
>medication for PD. Nothing worked so I didn't think he needed to be on them
>since they had side effects which affected Gordie's quality of life. We are
>trying Rob's supplement program right now.
>
>Norma

Camilla Flintermann, former CG for Peter 83/70/55
                     Oxford, Ohio
            <[log in to unmask]>

           on the web at   http://www.geocities.com/camillahf/index.html
           and also at   http://members.tripod.lycos.nl/genugten/flinterm.htm

               "Ask me about the CARE list for Caregivers of Parkinsonians ! "
           And visit the CARE webring at http://www.pdcaregiver.org

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