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>Jacob, >Instead of griping about the dirty pharmaceutical companies, there is >something you can do to help the situation. >PWP, Perry Cohen, is developing a program for coordination between the drug >industry, the FDA and us PWP. It is still being formed, but the FDA and the >drug companies are all interested in cooperating. WHY? >1) The cops (FDA) want to help the customer (PWP) get the best possible from >the vendor without sacrificing safety. It keeps Congress and the general >public off their back. >2) The vendors (Drug Cos) spend millions in developing new products and the >longer it takes to get approval, the more it costs them and the shorter their >remaining time on the patent. >3) We all know why PWP want to help. >Perry's program iis still in the formative stage but he needs qualified >people lined up for the following: >1. Development of a presence of PWP/caregivers in all major research centers. >Establishment of contacts with scientists involved in PD research. Give the >researcher some insight as to our problems on a personal basis, and also keep >abreast of the new developments in medicine. > >2). Cooperation with the FDA and drug companies, in order to help facilitate >the evaluation and approval of new drugs. For example, helping to locate >qualified volunteers for drug testing, education of patients about clinical >trials and FDA regulatory requirements. There is a bottleneck in finding >volunteers within the profile required. > >3. Dissemination of information about new research and treatment developments >to PWP. We need the info to prevent false claims and rumors. If not, I have >some snake oil that I wont claim will cure PD, but "... my cousin's >son-in-law was feeling good with it ...etc... for you a special price." > >Okay. If you can't help directly, you can find PWP/Caregivers that can. Perry >can use Drs, Nurses, Librarians, and any one else familiar with medical >research protocol. These need to be people who have the motivation and some >effort. Your Doctor and mine can't or wont. But a retired one or one with PD >might. > >Now that is positive, constructive and hopefully will prove fruitful. > >Would a Drug Co purposely withhold a new drug so as not to spoil the sales of >his old one? Maybe, but he'd be worried as all heck that some competitor >beats him to the finish line first and then he loses two ways. That is what >competition is all about a driving force spurring you on and it is called >Capitalism. > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn SID: PLEASE PASS MY NAME & E MAIL ADDRESS ALONG TO PERRY COHEN. IF I CAN HELP I'LL TRY TO DO SO. RALPH REICHERT, M.D. (RETIRED) [log in to unmask] ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn