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Dear Chris and other interested parties, I concur with your assessment. As many of you are aware, I had a right side pallidotomy in December '94 and a left side pallidal DBS in December '94, the first North American patient to have DBS. My neurosurgeons were - and are - Ron Tasker and Andres Lozano, the best in the business! Apart from some deterioration of my speech, I am in the 15th pecentile of PWPs, compared to the 90th pre-op. See my book "My Second Life: Living with Parkinson's Disease", published last May and my booklet "Neurosurgery for Parkinson's Disease: a patient's perspective" Cheers, Bill Harshaw ----- Original Message ----- From: "Chris van der Linden, M.D." <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, August 10, 2001 9:45 AM Subject: Michael J. Fox on TV, "looks terrible" in an Off-period > Unfortunately, M.J. Fox had the wrong treatment. Apparently he had a > thalamotomy, which works for tremor, but not for other signs of Parkinson's > disease. > The treatment was given at the time other surgical treatments were > available, such as pallidal or STN stimulation. > > Chris van der Linden, M.D. > Movement Disorder Center > St. Lucas Hospital Ghent > Ghent, Belgium > > > > > ----- Original Message ----- > From: "Ivan M Suzman" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Friday, August 10, 2001 2:04 PM > Subject: Michael J. Fox on TV, "looks terrible" in an Off-period > > > > One of my caregivers just telephoned me, > > haviing seen NBC' s Today show, this morning. > > > > MJFox was a guest, talking about stem cellls and the > > President's decision last night. > > > > My caregiver says MIchael looks 'terrible", has > > "aged rapidly" was bouncing, "at one point, right off his chair," > > eyes "staring," body sinuous and also > > shaking. terribly. > > > > Michael apparently said it was > > too early ,that he's not used to doing > > shows at this time of day (early morning). > > > > > > My caregiver worked for many years in > > Hollywood, with a famous entertainer, > > so he KNOWS what he's talking about.. > > > > Michael is amazing-his visibility and his > > willingness to endure the worst, and morevoer, > > the impact of allowing audiences to see > > him during an Off-period. > > > > Congratulations, Michael, on a > > tough, tough job. My prayers are > > with you to try to "hang in there" and > > presevere. I had to give up all but > > rare stage apearances, and although > > the requests for radio and TV appearances > > are increasing, I have to take enormous amounts > > of time, and work very hard to be seen publicly. > > > > Ivan Suzman > > 51-39-36 > > Portland, Maine > > > > PS Is Michael a 40-32-28??? > > Can someone please fill in his ID numbers > > if what i have is not correct?? > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn