Kathleen is right about seeing a movement disorders specialist. If you haven't before, be sure to diary the meds you take(time of day, amount, effects from med) so the mds can see how you feel throughout the day and what effects/if any from each med taken. There are many more meds available that might help you, so don't give up!!! Jeanette Fuhr 50/47/44? ----- Original Message ----- From: "Kathleen Cochran" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, August 08, 2001 10:36 AM Subject: Re: My neurologist has given up ........ In a message dated 8/8/2001 11:13:47 AM, [log in to unmask] writes: << He thinks I have "striatal nigra degeneration" which he called untreatable Parkinson's. >> What? Untreatable? He said this to you?! I wouldn't take his word on that. He's right about one thing. You need to see a movement disorders specialist. Long car trips are indeed a drag, but get a friend to drive you, pack some good tapes or CDs, sing along, snarf some snacks, and, come hell or high water, get to that specialist! Kathleen ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn