Dear Norma,
I am offering a suggestion for your husband
and you. Your description of his inability to gain
but limited movement suggests either insufficient
medication, or blocked medication. Blocked
medication may perhaps be related
to his meal schedule or his diet, either of which
can derail a good medication plan.
I faced this "freezing episode:" problem more
than occasionally during this past long winter.
I discovered that I had to regulate my L-dopa (the
drug in Sinemet and Sinemet CR ) intake around
the clock, day and night atttentively. This round-the-clock L-dopa
intake,enhanced by a Parkinson's - friendly diet and
aerobic exercise (long walks 4 times per week), has got me to
a state of noticeably more constant mental and physical functioning,
considering especially that I am in my 16th year since symptoms
appeared, and my 13th year of taking medications.
I hope you will let us know your husband's dose
schedule ..... Also, is he eating on a meal plan and meal schedule that
is
Parkinson's-friendly?
Hoping that we can be helpful,
Ivan Suzman
Portland, Maine
51-39-36
On Wed, 8 Aug 2001 13:24:10 -0400 Norma Dikeman <[log in to unmask]>
writes:
> I hate to be a pessimist but my husband has not found any real help
> from any
> medications and most have given him side effects worse than his PD.
> Though he can
> not move except with a walker, has very limited use of his arms and
> hands, can not
> get up out of a chair unless it is a lift chair or someone helps
> him, can't bathe
> himself etc etc, the medications made him so stoned he appeared to
> be mentally
> impaired plus he was having strange feelings in his head and would
> faze out
> entirely. We went to neurologists and movement disorder specialists.
> The results
> are that he gets limited help from sinemet but not enough to make it
> worth
> suffering the side effects.
> The one neurologist would like more tests taken but only to come up
> with a true
> diagnosis. He does not expect it to help as far as medications so we
> are not doing
> the test. Right now we are on a schedule of vitamins provided by Rob
> Schaaf. We'll
> see how they work.
> Norma CG for Gordie (66/65/58)
> (hope I got this right this time. 66 years old/diagnosed at 65/
> suspected he had
> it since age 58)
>
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