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Dear Renee,

> I have changed the timing of
> Sinamet<sp> to 1 hr before eating, she drinks soy milk instead of cow's
> milk..... made bran muffins, give her prune juice, offer fruit during
> the day, and try to make he ratio of protein to carbs  as close to 1:7
> as I can.... This has been going on for about a week....

It sounds like you're doing all the right things. Was she having
"on-off" fluctuations previously? That would be the reason to offer the
low-protein diet. Otherwise, it may not be needed -- just giving the
Sinemet an hour before meals might be sufficient to improve her "on
time."

> Today se lost
> her balance more extremely then before, she even fell on the ground when
> opening up the car door, also I heard he choking a few times today...
> and asked her about it.... seems her symptoms got worse today...

Could it be that perhaps the PD is progressing and she is becoming
undermedicated? If so, the doctor might want to change the kinds or
amounts of her medications.

> I know
> I am doing nothing wrong, and this could be just an off day....can
> anyone help me with a little insite into what might be happening
> today....

I'm sure you're not doing anything wrong, Parkinson's is very hard even
for the specialists to understand. Some things that can occur:  if a
person doesn't have a bowel movement for several days, the medications
can quit working no matter when they're given. Also, if she didn't get
enough fluids, she could become dehydrated, and that will change the PD
symptoms. She could have an infection, especially a urinary tract
infection -- and infections will definitely change or stop the action of
medications, and will cause behavior change as well.

> I will call and ask the Dr also tomorrow.... Thanks in
> advance...I have been with Gert for only 2 months and new to trying to
> understand Parkinson's... Renee

You're doing a fine job, just seeking information is a big step. The
people at PIEN are here for you, and for Gert.
Best regards,
Kathrynne



--
Kathrynne Holden, MS, RD
"Ask the Parkinson Dietitian"
http://www.parkinson.org/
Author: "Eat well, stay well with Parkinson's disease"
"Guidelines for Medical Nutrition Therapy for Parkinson's disease"
http://www.nutritionucanlivewith.com/

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