>Return-Path: <[log in to unmask]> >Date: Tue, 4 Sep 2001 10:27:02 -0400 >From: "L-Soft list server at UofT (1.8d)" <[log in to unmask]> >Subject: You are now subscribed to the PARKINSN list >To: Janet Paterson <[log in to unmask]> > >Tue, 4 Sep 2001 10:27:02 > >Your subscription to the PARKINSN list (Parkinson's Information Exchange >Network) has been accepted. > >Welcome! You have joined the PARKINSN mailing list, also known as the >Parkinson's Information Exchange Network (PIEnet). > >Please send a message to the list members (if you want to) introducing >yourself, perhaps telling us how you found us, and any >Parkinson's-related topics you would like. > >The address for posting messages to Parkinsn is: >[log in to unmask] > >Let me introduce myself. I am a secretary for four faculty members in the >School of Nursing, McMaster University. In September, 1992, I was >diagnosed as having Parkinson's ... hence my interest in this list. > >My purpose in starting the list was the exchange of information about >Parkinson's. The list rapidly changed into the largest support group I >know. Besides its original purpose, the list has become 'a means of >feeling connected' to others... a way of feeling we're not alone... of >making the road of living with pd easier to bear. > >I have always felt that we hear each other better on the list because we >can't see each other. Symptoms, age, colour, race, don't interfere. The >list knows no countries, has nothing to do with money... there's no >"what's in it for me?" > >But these same qualities mean our words are open to misinterpretation. >Since others can't see our wry smile or wink or hear our tone of voice, a >goal of keeping it "short & sweet" can result in appearing abrupt. > >Also, the same word can have different meanings and different shades of >meaning to different people in different areas of the world so care must >be taken in both your writing and your reading of the messages. > >Flaming and selling are not allowed. Please send messages in plain text >only. Do not make any changes in medication or any treatments without >consulting your physician. Be kind. Be honest. Share the time fairly.... >if you think you have taken more than your share of the list resources, >you just might have. > >Keep it generally related to Parkinson's. Don't abuse the generosity of >the University of Toronto's free gift of the list. Don't include all of >the message to which you are replying. Use plain text with no >attachments. Wash your hands with soap before you eat. :) In other words, >use the same common courtesy that you would elsewhere. > >We need everyone's voices if we are going to make a difference in the >care and treatment of pd and the motivation and funding of research. >Speak up. Tell your story. Ask your questions. Answer questions. >Debate/argue about the answers. Debate/argue about the goals, >administration, day-to-day functioning of the list. Tell a joke... but >please don't attempt to silence anyone else's voice. > >The messages on the Parkinsn list may be personal but they are NOT >private... never have been. The illusion of privacy when using e-mail is >just that: an illusion. > >Never, in the history of this planet, has this kind of relationship >existed. We meet in a place that has no walls. We talk to our friends >whom we have never seen. We care deeply for other members whom we will >never physically hug. Folks, we're making it up as we go along, so any >rules have to be flexible. Our Parkinsn Guidelines can be viewed at: >http://parkinsons-information-exchange-network-online.com/parkinsn.html > >If you wish to view Parkinsn messages online you may do so at: >http://parkinsons-information-exchange-network-online.com/maillist.html > >I hope you enjoy your involvement with the Parkinsn Information Exchange >Network. > >Barbara Patterson Owner Parkinsn John Cottingham co-owner Parkinsn > >Please save this message for future reference, especially if this is the >first time you are subscribing to an electronic mailing list. If you ever >need to leave the list, you will find the necessary instructions below. >Perhaps more importantly, saving a copy of this message (and of all >future subscription notices from other mailing lists) in a special mail >folder will give you instant access to the list of mailing lists that you >are subscribed to. This may prove very useful the next time you go on >vacation and need to leave the lists temporarily so as not to fill up >your mailbox while you are away! You should also save the "welcome >messages" from the list owners that you will occasionally receive after >subscribing to a new list. > >To send a message to all the people currently subscribed to the list, >just send mail to [log in to unmask] This is called "sending >mail to the list," because you send mail to a single address and LISTSERV >makes copies for all the people who have subscribed. This address >([log in to unmask]) is also called the "list address." You >must never try to send any command to that address, as it would be >distributed to all the people who have subscribed. All commands must be >sent to the "LISTSERV address," [log in to unmask] It is very >important to understand the difference between the two, but fortunately >it is not complicated. The LISTSERV address is like a FAX number that >connects you to a machine, whereas the list address is like a normal >voice line connecting you to a person. If you make a mistake and dial the >FAX number when you wanted to talk to someone on the phone, you will >quickly realize that you used the wrong number and call again. No harm >will have been done. If on the other hand you accidentally make your FAX >call someone's voice line, the person receiving the call will be >inconvenienced, especially if your FAX then re-dials every 5 minutes. The >fact that most people will eventually connect the FAX machine to the >voice line to allow the FAX to go through and make the calls stop does >not mean that you should continue to send FAXes to the voice number. >People would just get mad at you. It works pretty much the same way with >mailing lists, with the difference that you are calling hundreds or >thousands of people at the same time, and consequently you can expect a >lot of people to get upset if you consistently send commands to the list >address. > >You may leave the list at any time by sending a "SIGNOFF PARKINSN" >command to [log in to unmask] You can also tell LISTSERV how >you want it to confirm the receipt of messages you send to the list. If >you do not trust the system, send a "SET PARKINSN REPRO" command and >LISTSERV will send you a copy of your own messages, so that you can see >that the message was distributed and did not get damaged on the way. >After a while you may find that this is getting annoying, especially if >your mail program does not tell you that the message is from you when it >informs you that new mail has arrived from PARKINSN. If you send a "SET >PARKINSN ACK NOREPRO" command, LISTSERV will mail you a short >acknowledgement instead, which will look different in your mailbox >directory. With most mail programs you will know immediately that this is >an acknowledgement you can read later. Finally, you can turn off >acknowledgements completely with "SET PARKINSN NOACK NOREPRO". > >Following instructions from the list owner, your subscription options >have been set to "MIME" rather than the usual LISTSERV defaults. For more >information about subscription options, send a "QUERY PARKINSN" command >to [log in to unmask] > >Contributions sent to this list are automatically archived. You can get a >list of the available archive files by sending an "INDEX PARKINSN" >command to [log in to unmask] You can then order these files >with a "GET PARKINSN LOGxxxx" command, or using LISTSERV's database >search facilities. Send an "INFO DATABASE" command for more information >on the latter. > >This list is available in digest form. If you wish to receive the >digested version of the postings, just issue a SET PARKINSN DIGEST >command. > >More information on LISTSERV commands can be found in the LISTSERV >reference card, which you can retrieve by sending an "INFO REFCARD" >command to [log in to unmask] > janet paterson: an akinetic rigid subtype, albeit perky, parky . pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email: [log in to unmask] . smail: 375 Country Street, Apt 301, Almonte, Ontario, Canada, K0A 1A0 . a new voice: the nnnewsletter: http://groups.yahoo.com/group/janet313/ . a new voice: the wwweb site: http://www.geocities.com/janet313/ . ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn