Hello: I am 84 years old and a PWP for two years. Active and mobile. Discovered the List while searching for information about acupuncture for a non-computer friend who is down with cbgd. He is down in spirit and body and hopes that acupuncture may offer some relief. Problem is to locate a qualified therapist. Peace, Bob >From: janet paterson <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: FWD: You are now subscribed to the PARKINSN list >Date: Tue, 4 Sep 2001 10:43:15 -0400 > > >Return-Path: <[log in to unmask]> > >Date: Tue, 4 Sep 2001 10:27:02 -0400 > >From: "L-Soft list server at UofT (1.8d)" <[log in to unmask]> > >Subject: You are now subscribed to the PARKINSN list > >To: Janet Paterson <[log in to unmask]> > > > >Tue, 4 Sep 2001 10:27:02 > > > >Your subscription to the PARKINSN list (Parkinson's Information Exchange > >Network) has been accepted. > > > >Welcome! You have joined the PARKINSN mailing list, also known as the > >Parkinson's Information Exchange Network (PIEnet). > > > >Please send a message to the list members (if you want to) introducing > >yourself, perhaps telling us how you found us, and any > >Parkinson's-related topics you would like. > > > >The address for posting messages to Parkinsn is: > >[log in to unmask] > > > >Let me introduce myself. I am a secretary for four faculty members in the > >School of Nursing, McMaster University. In September, 1992, I was > >diagnosed as having Parkinson's ... hence my interest in this list. > > > >My purpose in starting the list was the exchange of information about > >Parkinson's. The list rapidly changed into the largest support group I > >know. Besides its original purpose, the list has become 'a means of > >feeling connected' to others... a way of feeling we're not alone... of > >making the road of living with pd easier to bear. > > > >I have always felt that we hear each other better on the list because we > >can't see each other. Symptoms, age, colour, race, don't interfere. The > >list knows no countries, has nothing to do with money... there's no > >"what's in it for me?" > > > >But these same qualities mean our words are open to misinterpretation. > >Since others can't see our wry smile or wink or hear our tone of voice, a > >goal of keeping it "short & sweet" can result in appearing abrupt. > > > >Also, the same word can have different meanings and different shades of > >meaning to different people in different areas of the world so care must > >be taken in both your writing and your reading of the messages. > > > >Flaming and selling are not allowed. Please send messages in plain text > >only. Do not make any changes in medication or any treatments without > >consulting your physician. Be kind. Be honest. Share the time fairly.... > >if you think you have taken more than your share of the list resources, > >you just might have. > > > >Keep it generally related to Parkinson's. Don't abuse the generosity of > >the University of Toronto's free gift of the list. Don't include all of > >the message to which you are replying. Use plain text with no > >attachments. Wash your hands with soap before you eat. :) In other words, > >use the same common courtesy that you would elsewhere. > > > >We need everyone's voices if we are going to make a difference in the > >care and treatment of pd and the motivation and funding of research. > >Speak up. Tell your story. Ask your questions. Answer questions. > >Debate/argue about the answers. Debate/argue about the goals, > >administration, day-to-day functioning of the list. Tell a joke... but > >please don't attempt to silence anyone else's voice. > > > >The messages on the Parkinsn list may be personal but they are NOT > >private... never have been. The illusion of privacy when using e-mail is > >just that: an illusion. > > > >Never, in the history of this planet, has this kind of relationship > >existed. We meet in a place that has no walls. We talk to our friends > >whom we have never seen. We care deeply for other members whom we will > >never physically hug. Folks, we're making it up as we go along, so any > >rules have to be flexible. Our Parkinsn Guidelines can be viewed at: > >http://parkinsons-information-exchange-network-online.com/parkinsn.html > > > >If you wish to view Parkinsn messages online you may do so at: > >http://parkinsons-information-exchange-network-online.com/maillist.html > > > >I hope you enjoy your involvement with the Parkinsn Information Exchange > >Network. > > > >Barbara Patterson Owner Parkinsn John Cottingham co-owner Parkinsn > > > >Please save this message for future reference, especially if this is the > >first time you are subscribing to an electronic mailing list. If you ever > >need to leave the list, you will find the necessary instructions below. > >Perhaps more importantly, saving a copy of this message (and of all > >future subscription notices from other mailing lists) in a special mail > >folder will give you instant access to the list of mailing lists that you > >are subscribed to. This may prove very useful the next time you go on > >vacation and need to leave the lists temporarily so as not to fill up > >your mailbox while you are away! You should also save the "welcome > >messages" from the list owners that you will occasionally receive after > >subscribing to a new list. > > > >To send a message to all the people currently subscribed to the list, > >just send mail to [log in to unmask] This is called "sending > >mail to the list," because you send mail to a single address and LISTSERV > >makes copies for all the people who have subscribed. This address > >([log in to unmask]) is also called the "list address." You > >must never try to send any command to that address, as it would be > >distributed to all the people who have subscribed. All commands must be > >sent to the "LISTSERV address," [log in to unmask] It is very > >important to understand the difference between the two, but fortunately > >it is not complicated. The LISTSERV address is like a FAX number that > >connects you to a machine, whereas the list address is like a normal > >voice line connecting you to a person. If you make a mistake and dial the > >FAX number when you wanted to talk to someone on the phone, you will > >quickly realize that you used the wrong number and call again. No harm > >will have been done. If on the other hand you accidentally make your FAX > >call someone's voice line, the person receiving the call will be > >inconvenienced, especially if your FAX then re-dials every 5 minutes. The > >fact that most people will eventually connect the FAX machine to the > >voice line to allow the FAX to go through and make the calls stop does > >not mean that you should continue to send FAXes to the voice number. > >People would just get mad at you. It works pretty much the same way with > >mailing lists, with the difference that you are calling hundreds or > >thousands of people at the same time, and consequently you can expect a > >lot of people to get upset if you consistently send commands to the list > >address. > > > >You may leave the list at any time by sending a "SIGNOFF PARKINSN" > >command to [log in to unmask] You can also tell LISTSERV how > >you want it to confirm the receipt of messages you send to the list. If > >you do not trust the system, send a "SET PARKINSN REPRO" command and > >LISTSERV will send you a copy of your own messages, so that you can see > >that the message was distributed and did not get damaged on the way. > >After a while you may find that this is getting annoying, especially if > >your mail program does not tell you that the message is from you when it > >informs you that new mail has arrived from PARKINSN. If you send a "SET > >PARKINSN ACK NOREPRO" command, LISTSERV will mail you a short > >acknowledgement instead, which will look different in your mailbox > >directory. With most mail programs you will know immediately that this is > >an acknowledgement you can read later. Finally, you can turn off > >acknowledgements completely with "SET PARKINSN NOACK NOREPRO". > > > >Following instructions from the list owner, your subscription options > >have been set to "MIME" rather than the usual LISTSERV defaults. For more > >information about subscription options, send a "QUERY PARKINSN" command > >to [log in to unmask] > > > >Contributions sent to this list are automatically archived. You can get a > >list of the available archive files by sending an "INDEX PARKINSN" > >command to [log in to unmask] You can then order these files > >with a "GET PARKINSN LOGxxxx" command, or using LISTSERV's database > >search facilities. Send an "INFO DATABASE" command for more information > >on the latter. > > > >This list is available in digest form. If you wish to receive the > >digested version of the postings, just issue a SET PARKINSN DIGEST > >command. > > > >More information on LISTSERV commands can be found in the LISTSERV > >reference card, which you can retrieve by sending an "INFO REFCARD" > >command to [log in to unmask] > > >janet paterson: an akinetic rigid subtype, albeit perky, parky . >pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email: [log in to unmask] . >smail: 375 Country Street, Apt 301, Almonte, Ontario, Canada, K0A 1A0 . >a new voice: the nnnewsletter: http://groups.yahoo.com/group/janet313/ . >a new voice: the wwweb site: http://www.geocities.com/janet313/ . > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: >mailto:[log in to unmask] >In the body of the message put: signoff parkinsn _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn