 |
 |
Ivan: I am 84 and have been PWP for two years. Recently I broke away from my neuro and persuaded my GP to work with me for 6 months. Your message to Rayilin will be proof that Internet information is not all hype. You are living proof that it can be helpful. I will try to avoid being a nuisance but I would appreciate your patience in this matter. The neuro refused to discuss anything that came thro the computer. I have one question now. What determines when you take the Tasmar and when you take it, do you alter your 3-hour medication /meal routine? My OFF periods are primarily periods of extreme fatigue. I take Sinemet CR 25/100 twice a day at 11:00 AM and PM. The neuro said time was not critical except half hour before meal or two hours after meal. I am active when I am not fatigued - 5'8" - 140 lbs. I have no caretaker but my son is here at night. I eat alone and prepare my own meals. Sorry that this is so long. Please bear with me. Bob Berger >From: Ivan M Suzman <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: Comtan >Date: Wed, 5 Sep 2001 10:05:33 -0400 > >Rayilyn. > >Yes, I did receive your e-mails. > >I discovered that by combining two types of Sinemet, I do the best. > >I start by taking 1/2 of a "regular" (yellow) Sinemet 25/100 tablet, > for a quick , but short-lasting response . My toes UNcurl, and my >stiffness >goes away. By adding a whole Sinemet CR to the half-tablet of regular >SInemet, >I get more "on" time , lengthening my on-periods significantly. > >I am careful to have low protein, high fiber meals, or snacks, timed to >start 20 to 30 >minutes after medications. I take meds every 3 hours or so. > >I am active, and need high-carbohydrate intake. >Yet, I am ingood shape, about 5' 10 1/2" , 158 lbs. > >Tasmar lengthened the on-periods even more. I never >had any trouble with SGOT or SGBT enzymes. I believe that >the Tasmar danger is hype, blown way out of proportion by >competing pharmaceutical companies. So blood tests >are not needed except maybe once a year. > > Sometimes, when I am well rested, andif I time things just right, > I have only slight loss of function in my hands during off-periods. > >I do have to rest when each off-period starts, however, or I would get >worn out. >I am vulnerable to mood swings and exhaustion and feeling low >during the off-times, so I am careful to try to smile and to rest, >with low expectations during those times. > > >And this is my 16h year of having a PWP's life -- not bad, eh?? > >Beautiful morning . My Concord grapes are dark violet >already, and heavy on the vines this year. It is >getting close to harvesting time. Shoud be an adventure! > >Ivan > >51, 39, 36 >cyber hugs to you: > I<<<Rayilyn>>>S > >On Tue, 4 Sep 2001 23:28:58 EDT [log in to unmask] writes: > > Ivan, I hope you got my email, my computer dumped me. It does that > > if I go > > on too long. It is not signed. It is really hard to retype it, so > > I hope > > you got it and it answered some of your questions. Thanks for your > > kind > > concern. [log in to unmask] > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: >mailto:[log in to unmask] >In the body of the message put: signoff parkinsn _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn