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check out www.pallidotomy.com for Parkinson information. > From: Ronaky Olga <[log in to unmask]> > Reply-To: "Parkinson's Information Exchange Network" > <[log in to unmask]> > Date: Sun, 31 Aug 1980 22:44:50 +0200 > To: [log in to unmask] > Subject: Hi everybody > > My name is Oga Maria, I'm writing you from Hungary, Europe. I'm 49, married, > have two daughters (26 and 24), one dog and two cats.I joined your list just a > few days ago. I have had PD for 10 years, but it took the doctors almost 7 > years to diagnose me and in that time wrote me off as a nervous person with > several rheumatological and unknown problems. Two years ago they put the name > of my illness, but it was not at all the name I wanted, I expected something > better that could be fixed and stopped. For a long time I was very depressed > (sometimes I still am) but after a while I adjusted to PD and I try to live a > quite normal life - if a normal life is possible wirth PD. I mainly have > symptoms (tremor and rigidity) on my right side and a little on my face, too. > I have problems with writing, going upstairs and downstairs, doing my work at > home, and there are days when I even am unable for example to cut a slice of > bread, I cannot speak for longer time and my voice has changed, many times I > am not able to eat or drink normally, etc. I often have extraordinary strong > pain in my neck, shoulders, spinale column and limbs, hardly I can sleep over > a night, I dream nightmares. I do also have almost all of the secondary > symptoms. My illness progressed to that point that I took disability > retirement in January 2000. > Here in Hungary we use the same meds as you do, but there are problems with > informing the patients. All I know about PD is from the USA and Canada, via > internet. I dare say that on our mother tongue people can get zero information > on their own illness. > > I am on Amantadine 4 times/day, Mirapexin and Rivotril also 4 times/day (only > under normal conditions, this means that if there is a party at us, or I go to > theatre or to the Opera, or I must do the shopping, so if something special > happens, I have to take more meds) Zoloft 1/day, Concor 5 (because of the > frequent extrasystoles in my heart), a special med 3/day for urine problems, > and four kinds of the California Fitness products (Green Care, Acidophilus, > multivitamins: New Life, and Citrimax & Chromium). > > Any information and practical advice on life style, what to eat, eating and > meds and vitamins or others - mainly their relation and effect on my PD and on > my body functions, would be highly appreciated. > > I am going to travel to Austria on Saturday and return on next Saturday. I > will answer your message after coming home. > > Greetings and my best wishes to everybody, > Thanks > > Olga Maria > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn