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Barb -- Now I remember that you were very ill for quite some time. I forgot it was the changing of the meds, and your own experience with Comtan. I seem to remember that you also had swallowing difficulties? Did that resolve because of your adjustment to a new med regime and schedule? Ann Gibbons -----Original Message----- From: Nancy Dreyfus <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Thursday, September 20, 2001 9:40 AM Subject: Re: Comtan - my story on why & how I dropped it* >Can you be more specific about deteriorated? Has he developed dyskinesia and >other signs of possible levodopa overdose or is the medication not working >on his PD symptoms? > >> ---------- >> From: Barbara Blake-Krebs >> Reply To: Parkinson's Information Exchange Network >> Sent: Thursday, September 20, 2001 9:28 AM >> To: [log in to unmask] >> Subject: Comtan - my story on why & how I dropped it* >> >> Ann wrote earlier in Sept.: >> << >> My husband has been on Comtan since the end of Aprril. He hates the taste >> of >> >> it and has a hard time getting it down. (Not so wuth other meds). His >> >> condition has deteriorated since he began Comtan and we are just coming to >> >> the realization that it might be this med. Has anyone else had a negative >> >> experience with Comtan? >> >> >> Ann Gibbons cg Joe 67/4 >> >> >> >> I n March 2000 I was struck down suddenly and nearly died from kidney >> failure >> broought on by RHABDOMYOLYSIS. At the time my meds were Sinemet, >> Mirapex, >> the COMT Tasmar, xanax, and Elavil. In the ICU where I hung out for >> about 5 >> days, I was given none of them. Whe my doc asked me which agonist I >> wanted, >> I said Parlodel (had never tried it); which COMT, I said Comtran, We >> changed other drugs as well except for the Sinemet. >> >> For the rest of the 5-1/2 weeks plus 2 weeks in nursing home, plus more >> weeks afterward, 9 times out of 10, I ended up spitting up most of the >> Comtran. inally, I went off it, and made other med changes too -- all w >> original doc. In my case it was not easy to drop the COMT med -- in fact >> it >> was h- - - ! Yo u might want to arrange for s unflappable, soothing home >> health worker to go on this particular journey, if you take it. (true in >> many >> cases I now think when making chabges in meds.) >> __________________ >> *disclaimer This story is based solely om ny personal experience and does >> not appear in WPSE partly because it happened after mss was finished, >> >> Barbara Blake-Krebs 1984/61 [log in to unmask] >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn