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Hello, There is a US based Multiple System Atrophy/Shy-Drager association. Please see http://www.shy-drager.com Their national conference slated to be held in Boston on Sept 14th weekend was postponed due to the tragic events in New York. It is being rescheduled for later in the fall, watch the website for more details. Also there is an online support group with over 500 members who can help with advice and resources. To join go to http://groups.yahoo.com/group/shydrager Regards, Pam [log in to unmask] ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn