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Dear Rayilyn,
Not everybody should be grouped with the few "bad apples" out there that
obviously dont understand PD.  We do not think you are faking it . It takes
courage to keep working with PD or any other crippling disease and it takes
more courage to realize its time to quit and let others replace you in the
work force. Some people just dont get it so let them be the small minded and
ignorant ones and put them on ignore after they have succeeded in hurting
your feelings so carelessly .
I think many would miss you here, I know we would , so please stay and know
some Parky's like you for you. '
Please have a better rest of the day.   Rob
----- Original Message -----
From: "Rayilyn Brown" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, October 03, 2001 12:51 PM
Subject: Clarification re SSDisability


> >From Rayilyn Brown, I'm sorry if my post was in bad taste.  It was the
truth,
> not funny and an atttempt to be brief.  I thoughteveryone with PD
understood
> that in early stages, symptoms are sometimes not noticeable AS WAS CASE
with
> me on my 1st try for disability, only intermittent tremor.  I worked the
1st
> 2 yrs cauase I wasa such a good typist i could cocmpnensate, see ihow I
typee
> now UNCORRECTED.  As for being "lazy" I taught high schooll in the inner
city
> on chemo whene i was 43-44 yrs old.  I understsand that younger parkies
who
> are able and wanta to work have trouble doing that.  Believe me I wish I
> coulld work at 65.  By my 2nd try, my tremor, dystonia, micrographia,
> bradykinesia were much worse so I did stagger into the office and shake
and I
> TREMOR ALL THE TIME NOW and I cry occasionally now, and so did my
grandfather
> who died of PD and he was a tough guy.  I never cried  iwth the cancer  I
was
> only trying to be of help based on my experience,  Does anybody think 4
> doctors would sign their names and reputations to a phony PD claim?   What
is
> disgusting is how sick people have to jump thru these ridiculous hoops to
> give bureaucrats a job.
>
> All this goes to show how easy itis to be misunderstood and how hard it is
to
> get earned, justified disability $147/mo, cut 60% from original amt cause
of
> my teacher's pension.
>
> If I am being misunderstood or anyone else thinks I am "faking" it, I want
> off the List.  I"ll just read the posts on the website.
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>
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