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Murray, Thanks for your information. I will just have to have let time take what ever course it takes. I just know that the ET dx I got in 99 doesn't go along with the resting tremor in my left arm, leg tremor, internal tremors, balance problems, and the Sinemet test was great! My tight muscles relaxed within three days and I felt like my muscles were melting off of me, and the pain was gone! So, as long as the symptoms are alleviated I guess that is the most important thing. Thanks again! Christine ----- Original Message ----- From: "Murray Charters" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, October 06, 2001 10:20 AM Subject: Re: Uncertain Diagnosis > Hi Christine, > I went to the Dr. (for problems eventually diagnosed as Parkinson's) > 11 years before correct dx. (Somehow it ain't easy...) > > See these stats... > > "Most experts would agree that true idiopathic Parkinson's disease is > often misdiagnosed. A study from the United Kingdom Parkinson's > Disease Society Brain Bank, London (20), revealed that only 76 of 100 > brains from persons with clinically diagnosed Parkinson's disease > fulfilled the pathologic criteria for the illness. Pathologic findings in > the other 24 cases included evidence of Alzheimer's disease, > progressive supranuclear palsy, vascular disease, postencephalitic > parkinsonism, and essential tremor. Another series of over 500 cases > found a similar distribution of pathologic diagnoses in patients with > parkinsonism (21). Thus, it is imperative to consider other causes > when evaluating a patient with suspected Parkinson's disease." > http://www.postgradmed.com/issues/1999/07_99/conley.htm > > I hope you have a long and happy life in spite of PD... I am. > > cheers ... murray > > On 5 Oct 2001, at 17:13, Christine wrote: > > > Well, I am really confused. I just saw a new movement disorder > > specialist today and she isn't sure I have PD. I was diagnosed in 99 > > with Essential Tremor. Then in May 2001 I was diagnosed with PD due to > > tremor, balance problems, no swing in my arms, rigidity. So I was put > > on Amantadine. I needed to follow up with this doctor since I am having > > sleep problems caused by restless leg on the same side as my arm tremor. > > She said she doesn't want to label my problem yet. I guess I don't > > have the "typical" hand tremor and my shortened gate shuffled is not the > > same as PD, and the rigidity in my legs are not quite like PD??? Ok, > > now she isn't sure so she is going to treat me with Requip to see if > > that helps my restless leg syndrome. The indecisiveness is really > > bugging me. If it isn't PD, what is it? Basically, seems like she > > wants to medicate me to control the symptoms and see over time what it > > turns into....wait and see game. > > > > Has anyone in this group every gone through this? I am really bummed. > > Not that I want PD, but I am in limbo now. Christine > > [log in to unmask] > > > [log in to unmask] > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn