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Katie: Thank you for sharing with us the information in your second posting. It helped me to view your situation with a much clearer perspective. I apparently misjudged you and the doctors. Sorry. Peace, Bob B. >From: [log in to unmask] >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: uncertain diagnosis--response to Bob B. >Date: Wed, 10 Oct 2001 00:42:28 EDT > >Bob, > > I did ask that very question, and I have the answer, but I did not >think it was pertinent to my posting. I have been diagnosed with bipolar >affective disorder for many years, and I have been on lithium for at least, >at least 23 years. I was taken off the lithium in June with the >understanding that the PD, or PD-like, symptoms, I experience/have >experienced were, or could be caused, by the lithium. I was put on >depakote >as an alternative to the lithium, and I am not stable psychiatricly; I am >taking stelazine with the hopes it will help get me stable on the depakote. > > > All of these drugs in the prior paragraph are contraindicated for a >person with PD, and they can all cause PD-like symptoms. My latest MDS is >also convinced that I do not have PD, that I had PD-like symptoms caused by >the lithium, but that there are other neurological issues/ problems/ >diagnoses that have to be considered once I am stable on the depakote. The >muscle spasms and dystonia were supposedly from the sinemet, and the action >of the first MDS this summer taking me summarily off all my medications >without any titration or hospitalization. > > This all means I have not had an easy summer even though it may be >likely that I do not have PD. And I am not going to get a clean bill of >health. I may even have another neurological problems plus the PD, but >they >dont know at this point. I am a very active CMI (chronicly mentally ill) >consumer and I am a very active PD consumer. I have asked your question, >and >many variants thereof repeatedly, but they, the MDSs and the psychiatrists >and the neurologists and the orthopedic doctors and the endrocinologists, >and >etc., and etc., simply do not know the answers. Or, at this point in time, >they do not know the answers. > > If I have PD it was probably caused by my consumption of large >quantities of stelazine in my late teens and 20s for my CMI issues: I had >"PD" in law school and as an undergraduate due to that medication. I am >now >prescribed stelazine because it is effective for my CMI issues, and I have >to >get stabilized on the depakote or go back on the lithium. And I have a >resultant increase, and exacerbation, of PD symptoms due to taking the >stelazine. I have not only asked questions, I have made my choices, and I >have decided and I may well have to decide in the future to have PD, or >"PD"-like symptoms, voluntarily due to the CMI issues I have. This is the >background you apparently needed to put my prior posting in perspective. >Katie > > > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: >mailto:[log in to unmask] >In the body of the message put: signoff parkinsn _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn