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Rick, I was diagnosed almost 6 years ago, I am also working full time,
for many of the same reasons you stated - mainly because I love my job. I
have aalso begun struggling lately  with the physical demands of
progressing symptoms and full time work. But as Jeanette said --  we need
to hang in there, do whatever we find fulfilling for as long aas we are
able to, and try not to dwell on what we can no longer do. BTW, it was
Rick who  coined the term "lessability"  which well describes  the stage
all 3 of us  seem to have arrived at. It helps to know we are not alone
in these struggles, and can express our thoughts among people who
understand exactly what we are saying. It also proves that this
discussion list can be  as valuable to us "old timers" as it is to the
newly diagnosed.

The first person with PD I ever spoke to was listmember Jim Cordy who
responded to my first tearful and frightened list posting, shortly after
i was diagnosed. He wrote - call me anytime if you have any questions,
which I did. It was Jim who first made me believe I could live with this
awful disease and also convinced me that the best way to cope was to
become  involved in Parkinson's advocacy --- at that time  working to
pass the Udall bill. Jim doesn't write as much to the list anymore, which
is our loss,  but I hope he still reads the messages, so I can say thanks
Jim. The last 5 years i have tried to follow your example, and  tried to
help other new members, as you had helped me.

I also wanted to thank you Rick for your comments on When Parkinson's
Strikes Early (btw Rick and I are not related !). Barb and I are  honored
that you allowed your writings to be included in it. The book could never
be, and surely was never meant to be, a definitive statement on life with
PD , as you said  "The same things will and should continue to be said
and shared by all of us. Maybe we need to repeat ourselves, because the
same stuff keeps coming up again and again."
Absolutely  true!

That is also why I feel so strongly that the parkinsn list must continue
in spite of the periodic squabbles and  misunderstandings, of people
leaving (but sometimes returning), in spite of messages that seem to have
nothing to do with PD (but maybe have everything to do with PD). Even in
spite of the occassional rudeness.  I cannot imagine what my life would
have been like without the daily dose of support and understanding and
wisdom from people on this list. It has been far more efffective than any
of the meds that have been prescribed.

Please folks,  keep on writing. Keep on  helping one another out. Keep on
fighting for our fair share of research dollars until the cure is found.
Thanks to you all,
Linda Herman

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