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Hello Sharon and list, The reason I didn't answer initially is because I felt like I have already taken up a lot of space here with my updates since my surgery. But if it will help anyone else, here goes......... Diane ----- Original Message ----- From: "Sharon YR Habing" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, October 22, 2001 5:41 PM Subject: DBS survey > Well Parkinsonians, it was almost a week ago that I put a DBS survey out > on the LIST. Am I perhaps to believe that not many survive the "ordeal", > because I received only one reply! I had more people who were > interested in the results, and I am sure they are as disappointed as I am > in the nonparticipation. Did I do something wrong? Did I ask the > wrong questions? Or are you all so happy with your "new life" that you > don't have time to sit down at the computer?! I'll try it again, if you > have had DBS surgery the Rockford Young Parkinson's Support Group would > like to know about your experience, whether it is negative or positive. > As I said before, you may reply either to the LIST or to me personally : > [log in to unmask] > > Sharon Habing, facilitator > Rockford Young Parkinson > > DBS survey > > Age-54 > > Age at diagnosis-40 > > Parkinson's symptoms/medications taken before DBS > I took 5 sinemet 25/100CR, 5 1/2 tabs of tasmar to coordinate with sinemet, klonipin, My symptoms were bad. I had to be in bed by about 7:00pm, because if I moved much after that I would lock up. It was awful. > > > Other medical conditions for which you take medication/medication taken > None > > > Previous surgical interventions - Pallidotomy, Thalamotomy, other > None > > > Date of DBS month/year > April and June 2000 > Parkinson's symptoms/medication taken after DBS at > 2 months > No meds except 2 5mg tablets of klonipin a day. I am a little slow both speaking and moving, but nothing like before. > > 6 months > NOT THERE YET, BECAUSE EVEN THOUGH I HAD ONE SURGERY IN APRIL, THE STIMULATORS WERE NOT TURNED ON UNTIL JUNE AFTER THE SECOND SURGERY. > > 1 year > > > Today > I THINK I ALREADY ANSWERED THIS IS THE ABOVE QUESTION. > > If it was yours to do over, would you undergo this procedure. Why or why > not? Please explain your feelings about this surgery as it pertains to > you and your particular situation > THIS SURGERY HAS BEEN A MIRACLE IN MY CASE. I HESITATE NOW TO SAY VERY MUCH BECAUSE I KNOW IT COULD PROBABLY HELP MANY OTHERS, BUT THOSE PEOPLE ARE UNABLE TO HAVE IT FOR ONE REASON OR THE OTHER. IT MAKES ME FEEL SAD FOR THE THOUSANDS WHO SUFFER EACH DAY, FROM THIS HORRENDOUS DISEASE.. IF THERE IS ANYONE OUT THERE THINKING ABOUT IT, I WOULD SAY "GO FOR IT" IF YOU CAN. I FEEL AS IF I HAVE BEEN GIVEN MY LIFE BACK. THINGS ARE NOT 100%, BUT THEY ARE SO MUCH BETTER THAN I COULD EVER HAVE HOPED FOR. THANKS FOR LISTENING, DIANE > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn