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Oops, I meant to send this back to the PD list. BBA ----- Original Message ----- From: "B.BRUCE ANDERSON" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, October 24, 2001 9:50 PM Subject: Re: Johnny Cash - Does he have Shy-Drager? > > ----- Original Message ----- > From: "Pam Bower" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, October 24, 2001 9:47 AM > Subject: Johnny Cash - Does he have Shy-Drager? > > > > For those wondering about Johnny Cash's diagnosis, it > > is all explained in this news article. His doctors > > are of the opinion he has neither Shy-Drager > > Syndrome(Multiple System Atrophy) nor Parkinson > > Disease. > > > > http://www.eonline.com/News/Items/0,1,7649,00.html > > > > Many of us on the Shy-Drager/Multiple System Atrophy > > mailing list are disturbed by one comment in this > > article: > > > > "According to Cash, his doctor told him if he'd had > > Shy-Drager, he wouldn't have lived this long. " > COMING TO THE DEFENSE OF THE DOCTOR JUST A BIT, IT APPEARS THAT HIS > STATEMENT WAS MADE A S A PRIVATE ONE FROM DOCTOR TO PATIENT AND WAS NOT > MEANT TO BE HEARD BY OTHER PATIENTS AFFLICTED WITH MSA/SDS. > > There are many on our mailing list who've survived > > 10, 15 and even several over 20 years by aggressively > > managing their symptoms so we think his doctor's > > remarks are quite callous and ignorant. > JUST TO SHOW YOU THAT I DON'T BELIEVE THAT SOME DR'S AREN'T "CALLOUS AND > IGNORANT, > ABOUT 2 OR 3 YEARS AGO I HAD A DOCTOR AT SCRIPPS GREEN, A CLINIC IN SAN > DIEGO, AFTER A BRIEF CONSULTATION - 15 OR 20 MIN. TOPS, TELL ME, WRONGLY, > THAT I HAD MSA/SDS. SHE THEN EXITED THE ROOM SO FAST IT WAS HARD TO TELL > WHICH DOOR SHE USED. THE FOLKS WHO WERE WITH ME AND I ALL AGREED IT > APPEARED TO BE BECAUSE SHE DIDN'T WANT TO ANSWER ANY QUESTIONS ABOUT THAT > DISEASE. > BBA > > Regards, > > Pam > > [log in to unmask] > > > > To join the Shy-Drager mailing list please go to: > > http://groups.yahoo.com/group/shydrager > > > > > > _______________________________________________________ > > Do You Yahoo!? > > Get your free @yahoo.ca address at http://mail.yahoo.ca > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn