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Sharon, Many [probably most] of us could possibly benefit from having a deep brain stimulator installed, but we are watching. We saw the benefits to fellow parkinsonians from the palidotomies fade as time went by in too many cases. All of the palidotomy patients in our particular area are either gone or much worse than before. One thalamotomy seems to be holding up. We saw the adrenal transplants fail absolutely. The results from most fetal tissue implants [none received in our area] have not been encouraging. We are not responding because we have not had the operation done YET. The gadgets are expensive, and any surgical intrusion into the brain is major surgery which should be carefully considered before a decision to "go for it" is made. Watchfully, Will Johnnston A.P.D.A. DelMarVA Chapter Pres. 4049 Oakland School Road Salisbury MD 21804 USA 410-543-0110 ----- Original Message ----- From: "Sharon YR Habing" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, October 22, 2001 8:41 PM Subject: DBS survey Well Parkinsonians, it was almost a week ago that I put a DBS survey out on the LIST. Am I perhaps to believe that not many survive the "ordeal", because I received only one reply! I had more people who were interested in the results, and I am sure they are as disappointed as I am in the nonparticipation. Did I do something wrong? Did I ask the wrong questions? Or are you all so happy with your "new life" that you don't have time to sit down at the computer?! I'll try it again, if you have had DBS surgery the Rockford Young Parkinson's Support Group would like to know about your experience, whether it is negative or positive. As I said before, you may reply either to the LIST or to me personally : [log in to unmask] Sharon Habing, facilitator Rockford Young Parkinson DBS survey Age Age at diagnosis Parkinson's symptoms/medications taken before DBS Other medical conditions for which you take medication/medication taken Previous surgical interventions - Pallidotomy, Thalamotomy, other Date of DBS month/year Parkinson's symptoms/medication taken after DBS at 2 months 6 months 1 year Today If it was yours to do over, would you undergo this procedure. Why or why not? Please explain your feelings about this surgery as it pertains to you and your particular situation ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn