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Will, this is exactly why our support group is doing the survey. Sharon On Tue, 23 Oct 2001 10:36:12 -0400 will johnston <[log in to unmask]> writes: > Sharon, > > Many [probably most] of us could possibly benefit from having a deep > brain > stimulator installed, but we are watching. We saw the benefits to > fellow > parkinsonians from the palidotomies fade as time went by in too many > cases. > All of the palidotomy patients in our particular area are either > gone or > much worse than before. One thalamotomy seems to be holding up. We > saw the > adrenal transplants fail absolutely. The results from most fetal > tissue > implants [none received in our area] have not been encouraging. > > We are not responding because we have not had the operation done > YET. The > gadgets are expensive, and any surgical intrusion into the brain is > major > surgery which should be carefully considered before a decision to > "go for > it" is made. > > Watchfully, > > > Will Johnnston > A.P.D.A. DelMarVA Chapter Pres. > 4049 Oakland School Road > Salisbury MD 21804 USA 410-543-0110 > > > > > ----- Original Message ----- > From: "Sharon YR Habing" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Monday, October 22, 2001 8:41 PM > Subject: DBS survey > > > Well Parkinsonians, it was almost a week ago that I put a DBS survey > out > on the LIST. Am I perhaps to believe that not many survive the > "ordeal", > because I received only one reply! I had more people who were > interested in the results, and I am sure they are as disappointed as > I am > in the nonparticipation. Did I do something wrong? Did I ask the > wrong questions? Or are you all so happy with your "new life" that > you > don't have time to sit down at the computer?! I'll try it again, > if you > have had DBS surgery the Rockford Young Parkinson's Support Group > would > like to know about your experience, whether it is negative or > positive. > As I said before, you may reply either to the LIST or to me > personally : > [log in to unmask] > > Sharon Habing, facilitator > Rockford Young Parkinson > > DBS survey > > Age > > Age at diagnosis > > Parkinson's symptoms/medications taken before DBS > > > > Other medical conditions for which you take medication/medication > taken > > > > Previous surgical interventions - Pallidotomy, Thalamotomy, other > > > > Date of DBS month/year > > Parkinson's symptoms/medication taken after DBS at > 2 months > > > 6 months > > > 1 year > > > Today > > > If it was yours to do over, would you undergo this procedure. Why > or why > not? Please explain your feelings about this surgery as it pertains > to > you and your particular situation > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn