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As usual, Kathleen, I look forward to your posts as a voice of measured
reason. I wish we could all learn to listen to our inner calm and reflect on
the possible effects our words--this, as yet another alert for vigilence in
the greater world is being issued.

-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]]On Behalf Of Kathleen Cochran
Sent: Monday, October 29, 2001 09:29 AM
To: [log in to unmask]
Subject: loneliness, PD, politics, et al., etc., undsoweiter


In her last post, Olga mentions loneliness...I'm sure this touches many of
us
who feel lonely with this disease for various reasons. One way to not feel
so
lonely is to share a joke or a personal story. Another is to think and
communicate about the larger world, which can be energizing and also puts
our
illness in a somewhat different perspective.

While the nominal raison d'etre of the list is to facilitate sharing of PD
information, and that is a reason why we all signed on, IMHO the greater
purpose is to create community. As in any community, there will be people we
are drawn to and those we avoid, meetings we choose not to attend, and times
when we need a break from the whole thing. Certainly clear subject headings
will help guide our choices of what to participate in.

It's also easy in this virtual community, as in a real one, to hurt each
other's feelings inadvertently and, conversely, to take offense where none
was intended. As I see it, each post is just a snapshot, reflecting what
someone was thinking and feeling in that moment of writing, but because the
list is not "real time," we miss many nuances of mood and emotion, and we
don't get to really listen in the way that we could face to face. We don't
know why people write what they write when they write it, but I think it's
safe to assume that whatever they say, it arises in some part out of a need
for connection, whether it is to share a laugh, to vent, or just to feel
alive.

I've been on a few listservs, but none so vital and connected as this one.
Long may it wave.

Pax nobiscum,
Kathleen

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