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Ron I was told to stay off the Internet when I was first dx .(4 yrs. ago) as it was too depressing and full of whacko's. I stayed off for three years. If I knew then what I know now............and I know this is old news. When I decided to run with it and try the things you talk about it helped my state of mind - which helps everything else. I have the acceptance I never thought I would have - and that is my motivation. I love hearing your wife is 70 yrs. young.. Inspiring. Bonnie ----- Original Message ----- From: "RON HEIMBACK" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, November 11, 2001 1:56 PM Subject: Re: had it 23 yrs > Hello All, > > My name is Ron and I have been reading the posts for the past month or > so and feel compelled to add my 2 cents worth. I am my wife's caregiver > and have been for over 20 years. She was first diagnosed [about age 50] > when we noticed that she was dragging her foot on our daily walks. > Fearing a possible stroke, we were "relieved", at that time, to find > that it was "only" PD. Our world changed that day, even though we were > unaware of this at the time. There are several things that we have > learned through our experience. > > One is to get to know your enemy and look for ways to defeat him. > Research the web [ go to Google or any other good search engine and > search parkinsons] and join lists like this one. Find and join a local > support group. Hopefully you have a good Neuro and he or she will allow > and encourage trying various meds and combinations. Over the years we > have tried many combinations and the constant surveillance and adjusting > of life style and medications can be frustrating. No two people react > the same to their medications. In her case we found that Comtan was a > Magic pill. She takes a Comtan, 25/100 sinemet and permax 5 times daily > about 4 hours apart. This has worked very well for the past year. > Recently we find that this is not enough and have to double her dosage > during bad "offs". We are currently discussing a possible DBS operation > in the near future, because the medication is no longer holding as well > as it has been. I have to add that she is a very young 70, she often > passes for age 50 or less and this is her only health problem. For > this, we thank God. > > I hope that this short bio may help some one else facing these > problems. Stay active and don't give in to this thing called PD. > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn