 |
 |
Hi Judith, Have had an agonizing similiar experience. Find I need the Sinemet for strength, but one of the agonists for muscle spasms. I sometimes wish I could wish PD on several neurologists I know for just a day. Walk a mile in my shoes, etc. Carole --- Judith Richards <[log in to unmask]> wrote: > I just went through several weeks of hell while > being weaned off > Requip. Main problem...when "off" I had muscle knots and > spasms in the > backs of my upper thighs. Neuro said the problem with my > legs had > nothing to do with Parkinson's and he wouldn't prescribe > any medication. > In fact, he told me to cut my Sinemet in half and come > back in two > weeks. > Both my husband and I protested but to no avail. > During the drive home I told my husband he might > as well shoot me or > I'd end up in a psychiatric hospital. > We put in an emergency phone call to my previous > neuro and his > assistant said, "Leave the Sinemet as is" until they > could see me. > To make a long story short, when I finally got to > see my previous neuro > (he is our one and only MDS but he now has an assistant) > they started me > on Permax. He agreed with me that the pains were caused > by Parkinson's, > and said 40 per cent of parkinsonians suffer pain from > muscle rigidity > and dystonia. > I found a good article on pain in Parkinson's by > Dr. Abe Lieberman on > the NPF site. The URL is: > http://www.parkinson.org/parkpain.htm > I suggest you take the article to your neuro and > let him/her read it. > Judith > > > Will Johnnston wrote: > >>Bev, > > There is a good chance that the morning leg pains and > crawl may be > Parkinson's. Your note says that after a couple of hours > he is able to > reach a standing position. > > Three quick questions: > > 1. Do the leg pains generally start when he is waking up > / getting out > of > bed? > > 2. Does he use the Sinemet CR or the generic equivalent > Sinemet > [carbidopa/levodoa ER]? > > 3. How many hours have passed since his last dose of > Parkinson's > medication? > > --------------------------- > I have a similar situation.<< > > > > > -- > Judith Richards, London, Ontario, Canada > [log in to unmask] > EASE THE BURDEN > FIND A CURE > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn __________________________________________________ Do You Yahoo!? Find the one for you at Yahoo! Personals http://personals.yahoo.com ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn