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Judith-Good to hear from you. Having done the Which-Agonist-Is-Right-For-Me Dance, I sympathesize. For I, too, cannot manage on just Sinemet. Too stiff. Have been on most of them. Permax left me breathless. ReQuip was particularly memorable, since it made me uncomfortably close to crossing that staff-client line, and becoming one of of my psychiatric patients. So difficult, finding the right mix of meds for YOU. Because while each of us has the same disease, or some version thereof, each of us has a body chemistry that is uniquely our own. Making our response to any given drug...unpredictable, at best. AND the drugs we need to take are, by their very nature, powerful and mind-altering. Makes me want to say to my neuro, you go FIRST.I used to say to say things like that to him until I found out: #1, He has absolutely no sense of humor, and #2, He looked at me as though I was a candidate for a mini-mental exam. Liked the article. Feel better soon. Take care, also. Carole --- Judith Richards <[log in to unmask]> wrote: > Hi Carole, > It's been ages since I heard from you, but then I > haven't been posting > or writing much. > I've started back on Permax. I was on it before > but on a very low dose. > In February I came down with the flu...a bad one that > kept me in bed for > three days. After that my PD and meds went completely > out of whack. I > told both my family and my then neuro. I don't know if it > was just a > coincidence or what. Of course the docs didn't know > either. > When I saw my neuro in May, after some > discussion, he decided to put > me on Requip instead of increasing the Permax. Around the > 3 - 6mg > point I told the neuro that I didn't think Requip was > working and I felt > generally unwell most of the time. He said "we won't call > it a failure > until we hit 16mg a day. Well, we it hit 16mg and went up > to 18mg and > finally 20mg. By then I was having hallucinations, panic > attacks and the > muscle spasms were just a bad, if not worse. > He finally weaned me off Requip, but then during > my last appointment > (with meds working beautifully) he said he couldn't give > me anything > because I was doing so well on just the Sinemet. > Both my husband and I told that the Sinemet only > lasted for two hours > and then the rigidity would set and the pain would start > all over again. > However, he insisted that the spasms were not PD > related and then said > we were to my Sinimet in half and come back to see him in > two weeks. I > knew I couldn't possibly function or stand the pain that > would surely be > there. > Fortunately I was able to contact another neuro > and am now under their > care. Things 'seem' to be improving but it's a slow > process titrating to > the level where they want me to be. > I hope things improve for you. Just remember, > they may be the doctors > and have all the credentials, but they don't know your > system as well as > you do. > Take care, > Judith > > BTW--I mailed Dr. Lieberman's article to the neuro. > Perhaps it will save > some other poor soul from going through what I went > through. > > > >>Have had an agonizing similiar experience. Find I need > the > Sinemet for strength, but one of the agonists for muscle > spasms. I sometimes wish I could wish PD on several > neurologists I know for just a day. Walk a mile in my > shoes, etc. > Carole<< > -- > Judith Richards, London, Ontario, Canada > [log in to unmask] > EASE THE BURDEN > FIND A CURE > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn __________________________________________________ Do You Yahoo!? Find the one for you at Yahoo! Personals http://personals.yahoo.com ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn