 |
 |
At 05:58 AM 11/17/01 -0800, you wrote: Dave Moreland here 58/dx 14 ,Palidotomy,1995. I am now taking sinamet 50/200 cr, Pramipexole 1.5 mg/ entacapone 200mg, 4 /tid; Amanadine, 200 mg 2/tid; carbidopa/levodopa 25/100 6 /tid; atenolol 50 mg 1 /tid. This mix works for me , I have tried just about ither combimation of pills or what ever My day is pretty seamled. although i fall a lot. The worst injury I have sustained from a fall is a broken index finger on my left hand, then iget an iccasional skinned knee. I know all the steps tothe dance and i don't dance it very gracefully. >Judith-Good to hear from you. Having done the >Which-Agonist-Is-Right-For-Me Dance, I sympathesize. For I, >too, cannot manage on just Sinemet. Too stiff. Have been on >most of them. Permax left me breathless. ReQuip was >particularly memorable, since it made me uncomfortably >close to crossing that staff-client line, and becoming one >of of my psychiatric patients. So difficult, finding the >right mix of meds for YOU. Because while each of us has the >same disease, or some version thereof, each of us has a >body chemistry that is uniquely our own. Making our >response to any given drug...unpredictable, at best. AND >the drugs we need to take are, by their very nature, >powerful and mind-altering. Makes me want to say to my >neuro, you go FIRST.I used to say to say things like that >to him until I found out: #1, He has absolutely no sense of >humor, and #2, He looked at me as though I was a candidate >for a mini-mental exam. Liked the article. Feel better >soon. >Take care, also. >Carole > >--- Judith Richards <[log in to unmask]> wrote: >> Hi Carole, >> It's been ages since I heard from you, but then I >> haven't been posting >> or writing much. >> I've started back on Permax. I was on it before >> but on a very low dose. >> In February I came down with the flu...a bad one that >> kept me in bed for >> three days. After that my PD and meds went completely >> out of whack. I >> told both my family and my then neuro. I don't know if it >> was just a >> coincidence or what. Of course the docs didn't know >> either. >> When I saw my neuro in May, after some >> discussion, he decided to put >> me on Requip instead of increasing the Permax. Around the >> 3 - 6mg >> point I told the neuro that I didn't think Requip was >> working and I felt >> generally unwell most of the time. He said "we won't call >> it a failure >> until we hit 16mg a day. Well, we it hit 16mg and went up >> to 18mg and >> finally 20mg. By then I was having hallucinations, panic >> attacks and the >> muscle spasms were just a bad, if not worse. >> He finally weaned me off Requip, but then during >> my last appointment >> (with meds working beautifully) he said he couldn't give >> me anything >> because I was doing so well on just the Sinemet. >> Both my husband and I told that the Sinemet only >> lasted for two hours >> and then the rigidity would set and the pain would start >> all over again. >> However, he insisted that the spasms were not PD >> related and then said >> we were to my Sinimet in half and come back to see him in >> two weeks. I >> knew I couldn't possibly function or stand the pain that >> would surely be >> there. >> Fortunately I was able to contact another neuro >> and am now under their >> care. Things 'seem' to be improving but it's a slow >> process titrating to >> the level where they want me to be. >> I hope things improve for you. Just remember, >> they may be the doctors >> and have all the credentials, but they don't know your >> system as well as >> you do. >> Take care, >> Judith >> >> BTW--I mailed Dr. Lieberman's article to the neuro. >> Perhaps it will save >> some other poor soul from going through what I went >> through. >> >> >> >>Have had an agonizing similiar experience. Find I need >> the >> Sinemet for strength, but one of the agonists for muscle >> spasms. I sometimes wish I could wish PD on several >> neurologists I know for just a day. Walk a mile in my >> shoes, etc. >> Carole<< >> -- >> Judith Richards, London, Ontario, Canada >> [log in to unmask] >> EASE THE BURDEN >> FIND A CURE >> >> >---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > >__________________________________________________ >Do You Yahoo!? >Find the one for you at Yahoo! Personals >http://personals.yahoo.com > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn > > Yours and His David L. MORELAND ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn