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Hi Kathleen,
I too had surgery a little over a year ago and also felt great. I was DX in
1997 and had signs in 1994. I run and do yoga to help keep this thing at
bay. I still have times that I wake and know that I am in a bad time not
able to run well and just all over not well then I wake some mornings and
know that things are better. I feel that we all have those spells. The
winter seems the hardest for me, but still run and keep going. I did how
ever feel that right after surgery that I did not need my pills, for about a
week I think. I wonder if the anesthesia had anything to do with that.
Janice
----- Original Message -----
From: Kathleen Cochran <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, November 18, 2001 7:17 PM
Subject: Re: tremors and surgery


> In a message dated 11/18/2001 12:56:19 AM, [log in to unmask] writes:
>
> << ...for about 3-4 days post op i required almost none of my daily meds.
I
> felt the best that i've felt for 5 years....My neuro just keeps telling me
to
> keep up with exercise, when i can, and theres hope around the corner for
new
> treatments in the coming years. I'm tired of waiting and think i'm
starting
> to get depressed. >>
>
> Kathy,
>
> I think your story of feeling terrific post-op is very interesting. Could
> there be something about being under anesthesia that gives the brain and
body
> a chance to relax and regroup? I wonder if any of the doctors on the list
can
> comment.
>
> I can well imagine that after 16 years, you are tired of waiting. Having
> logged less than half your time with PD, I often find it daunting to think
of
> the road ahead, and I occasionally have the irrational thought that I can
> just say "OK, enough, I'm ready for this to be over now" and the disease
will
> somehow disappear.  Your three or four days of feeling better than you
have
> in years sounds like that dream come true, and having those good feelings
> disappear must have felt cruel. No wonder you are downcast.
>
> Keeping up our spirits with this disease is hard work - possibly the
hardest
> work of all. I wish you the best, and I urge you to seek whatever support
you
> need.
>
> I am glad you reached out to the list. Please keep posting.
>
> Regards,
> Kathleen
>
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