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Hello Rayilyn and list.  I respect your efforts of not using  Parkinson's
drugs. I have fought it for the first four years since diagnosis but have
recently succumb to one-half pill of Sinemet three times a day for about two
months now.  I know some people will say that I am under Medicaidedbut I am
preferring that to the possibilities of Dyskinesia.  It's my impression that
the medications in a lot of cases is causing the Dyskinesia.  There hasn't
been any lessening of symptoms with the Sinemet therefore I am considering
discontinuance.  I have read that it may even cause tremors.  When I last
saw my neurologist I estimate there was any studies that have been done on
people not taking medication.  His answer was "there is 2000 years of
history." That didn't answer my question.
It appears to be the trial and error game for the neurologists.  With hope
they will get on with the research.Rayilyn, how long have you had PDand how
are you doing on no medications?  Best wishes.
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----- Original Message -----
From: "Rayilyn Brown" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, November 18, 2001 6:57 PM
Subject: Re: Efficacy of PD Meds


> Judith and Carole, I probably shouldn't be saying anything, but the
> conditions you describe are why I don't take PD meds.  Life is awful with
> constant tremors, stiffness, bradykinesia and dystonia, fatigue and pain,
but
> exercise helps me the most.   However, I hear countless people on meds
> describing the same things.  I know PD meds are lifesavers to most PWP.
>
> I'm not happy with the neuros either, but they only have so many meds in
> their bag of tricks and it seems like everyone takes one to elliminate one
> thing and something else for side effects, and on and on.  We need some
> decent, more effective meds.OK< I'll shut up.  Rayilyn
>
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